Saturday, November 1, 2008

Spina Bifida Update

Scott and I have been overwhelmed by the outpouring of support that we have received. We thank all of you who have offered prayers on our behalf and who will participate in praying and fasting for Hayden this Sunday.

The past two weeks have been filled with many educating moments. Within the first week of learning of Hayden's birth defect, we worked dilligently at informing family and scheduling specialist doctors apointments. This week we spent every day with different or multiple doctors while Hanna was cared for by many friends and family. After gathering as much information as we possibly could, and working towards getting accepted into the MOMS Spina Bifida Study, we believe that we should learn by next week if Hayden is a candidate for the study.

All of the doctors that we have meet with have been wonderful and supportive of us. They are the busiest specialized group, but have made us every accomodation to see us quickly to educate us and then passing information onto the MOMS study. Knowing that they are here to support and work with Hayden after he is born gives us a sense of gratitude to live in a city this size that has a special Spina Bifida Clinic.

Emotionally we have at many times been overwhelmed and felt powerless. The love and support from others has lifted us up. Hanna is the greatest joy in our home and helps to remind us of all of the happiness that Hayden will contribute to our lives.

All of our love, Adrienne, Scott and Hanna

1 comment:

Kristy said...

Please know that we're thinking and praying for you guys. I've been wanting to call but unsure if you have the time to talk about it. Please know that I'm here if you ever need to talk. Alan and I love you guys and hope and pray for the best. Love, Kristy