tag:blogger.com,1999:blog-51005892664530485032024-02-18T20:42:07.780-06:00Texas TriggsAdrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.comBlogger212125tag:blogger.com,1999:blog-5100589266453048503.post-2549016704374968722018-08-17T21:08:00.002-05:002019-11-08T09:01:36.119-06:00A New School Year of Firsts<div class="separator" style="clear: both; text-align: center;">
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<span style="text-align: start;">We had a wonderful summer full of rest, vacations and camps. </span><span style="text-align: start;"> </span></div>
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This new school year, 2018-2019, is Garrett's first year at Lakeway Elementry School as a Kindergartener with his big brother, Hayden in 4th grade.<br />
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He gets to have his first teacher, Mrs. Crenshaw, who happens to have been Hayden's special education teacher for the past few years.<br />
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I can hardly stand to be without him for the whole day. He is my baby boy.<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEic0XNw7kAoMB36WfpyzTTPFNVieJBfaturEqisBipIwFvSWKgBlDHpDhOYhTCDIM1KaiWGLnIWnbXghkQXVhUebYKOKgp7yVFKdVO2AH5ixL7AyMGPUtesG218_J2xumswQ3qr_Cak4Z8/s1600/IMG_1407.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEic0XNw7kAoMB36WfpyzTTPFNVieJBfaturEqisBipIwFvSWKgBlDHpDhOYhTCDIM1KaiWGLnIWnbXghkQXVhUebYKOKgp7yVFKdVO2AH5ixL7AyMGPUtesG218_J2xumswQ3qr_Cak4Z8/s320/IMG_1407.jpg" width="240" /></a></div>
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He is thrilled that he gets to be Batman and Superman with one of his best buddies from Emmaus Preschool.<br />
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Although he isn't in class together, he gets to ride the bus with his long-time buddy.</div>
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It is also Hanna's first year in Middle School at Hudson Bend being all by herself without being defined by her brothers. It reminds me very much of the book Wonder and the sister, Via.<br />
<a href="https://www.youtube.com/watch?v=TaWCDLCl0YI">https://www.youtube.com/watch?v=TaWCDLCl0YI</a><br />
<a href="https://www.youtube.com/watch?v=cnwC7Dibfkk">https://www.youtube.com/watch?v=cnwC7Dibfkk</a><br />
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<span style="text-align: start;">Hayden is BMOC (big man on campus) this year being in 4th grade with an excellent teacher, Mr. Fazzio team teaching with Ms. Wilson. I couldn't be more pleased with his teacher who has over 30 years of experience.</span><br />
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Neal has been Hayden's nurse since Kindergarten and is now employed by the school. It is a win for everyone.</div>
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Nurse Christine will be with Hayden for a second year. She is wonderful at fostering his independence.<br />
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Hayden loves school. The new buses are pretty exciting too but not quite as exciting as being home alone for the first time in 12 years.<br />
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Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com2tag:blogger.com,1999:blog-5100589266453048503.post-73407581507940617612018-05-28T22:55:00.000-05:002019-11-08T09:02:01.267-06:00New Trailer for the Wheelchair<br />
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<span id="goog_1711238892"></span><span id="goog_1711238893"></span><br />Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com0tag:blogger.com,1999:blog-5100589266453048503.post-29006660424443743652018-05-13T23:29:00.000-05:002019-11-08T09:04:41.375-06:00Year of the Woman- Happy Mother's Day 2018<div class="separator" style="clear: both; text-align: center;">
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<span style="font-family: "georgia" , "times new roman" , serif;">I am honored and grateful for this Mother's Day for my strong mother, step-mother, mother-in-law, step-mother-in-law, grandmothers and the many adopted mothers in my life. Most of all I am grateful to be a mother to my three children. I was honored to a wonderful week of school celebrations and friends.</span><br />
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Hanna's 5th grade Mother's Day celebration was amazing and more than I could have expected.<br />
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<span style="font-family: "georgia" , "times new roman" , serif;"><br /></span><span style="font-family: "georgia" , "times new roman" , serif;">The last two weeks I ran two races, neither of which did I win. I ran my last marathon (Nashville) and my last campaign (LTISD School Board). Both took me roughly 5 months of daily work, training and a lot of fun with friends along the way. Both ended with tears for different reasons, but both ended with a sense of relief that I never gave up and accomplished my goal of completing my two great challenges.</span><br />
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<span style="color: #454545; font-family: "georgia" , "times new roman" , serif;">Acting on the prompting to run for the school board put me in an uncomfortable position to speak out and stand up in the face of personal insecurity and public judgment.</span><br />
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhJnaM97Y4rIzQtX0FSfs51AlK-V5WoTAaGdt18TLfLt17qGynPixIT3naANlOZumfbZc9txx8VxcwMUGR1zIZpZiBk16cfScev81GrK_0puDKujC3wzf5f76OssAo7pwh6cgVtpHgdgEU/s1600/IMG_9442.jpg" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhJnaM97Y4rIzQtX0FSfs51AlK-V5WoTAaGdt18TLfLt17qGynPixIT3naANlOZumfbZc9txx8VxcwMUGR1zIZpZiBk16cfScev81GrK_0puDKujC3wzf5f76OssAo7pwh6cgVtpHgdgEU/s320/IMG_9442.jpg" width="240" /></a><br />
<span style="font-family: "georgia" , "times new roman" , serif;">The reminder of why I was doing it, kept me going for people like these.</span><span style="font-family: "georgia" , "times new roman" , serif; margin-left: 1em; margin-right: 1em;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9DhGPQ1pPpy8LGYRm6_sjfZAGxmYtoHxQIdcF0h8oPhSe0IHlYW8MSVceuEVhhH9dOY0Vm51X1exViMuRChpAclFCdVsKfy6d5aiee4jY2isryrczOdbmmL0Z7O8bjyRzZZwi1ZiU84k/s1600/IMG_9476.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1200" data-original-width="1600" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9DhGPQ1pPpy8LGYRm6_sjfZAGxmYtoHxQIdcF0h8oPhSe0IHlYW8MSVceuEVhhH9dOY0Vm51X1exViMuRChpAclFCdVsKfy6d5aiee4jY2isryrczOdbmmL0Z7O8bjyRzZZwi1ZiU84k/s320/IMG_9476.JPG" width="320" /></a></span><br />
<span style="font-family: "georgia" , "times new roman" , serif;">Every day was a learning experience some of the pleasure and some of the pain. Neither of them had the outcome that I had hoped for, but I can say that I did my best. </span><span style="font-family: "georgia" , "times new roman" , serif;">I couldn't have completed either race if it weren't for the sacrifice of my husband, my family and the support, love, and encouragement of friends. Both races bonded my family together in service, sacrifice, and planning.</span><br />
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiTg3Lr3K409GWOecfu0Dj9vurlQr1kZEDrtFbp2ypFrgsVV-ECwl37yvBAl8NjHLo2BctifCdyCjT9J1O_Q_cPfn1Jru9tcX1JrIdWQa0AHV5qUFyR8Q-JcmNG_K0ElcKQUY88sZ_qRrY/s1600/IMG_9303.jpg" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiTg3Lr3K409GWOecfu0Dj9vurlQr1kZEDrtFbp2ypFrgsVV-ECwl37yvBAl8NjHLo2BctifCdyCjT9J1O_Q_cPfn1Jru9tcX1JrIdWQa0AHV5qUFyR8Q-JcmNG_K0ElcKQUY88sZ_qRrY/s320/IMG_9303.jpg" width="240" /></a><br />
<span style="font-family: "georgia" , "times new roman" , serif;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgtjtODzCFQvuxj2HHPVgPHbcovQurXUT-FYapKgchMdkTI2lko7vUf3VDLRgWKItc6GA6vSHvvCqU5CSCrqZjW3QgUZ8Ibgz2FElwfwLYBh_kzPia-Gnp9OXwJVkMLB6IGwFleqRXdVFw/s1600/IMG_E9398.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgtjtODzCFQvuxj2HHPVgPHbcovQurXUT-FYapKgchMdkTI2lko7vUf3VDLRgWKItc6GA6vSHvvCqU5CSCrqZjW3QgUZ8Ibgz2FElwfwLYBh_kzPia-Gnp9OXwJVkMLB6IGwFleqRXdVFw/s320/IMG_E9398.JPG" width="240" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgFBkZwPQy6dl70DOkEgXW4_1E7Q72eIRZpswG_Gh9KwOG5Oyn0QrTGjv3Wcf_OGxoJDp7U1SmsHua5FYYVESJLK-JDF1Ffmcim0kVcjM6uoCsPK_UAdZAZyUIBkqlQIRatsJC9W3oAso8/s1600/IMG_E9397.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgFBkZwPQy6dl70DOkEgXW4_1E7Q72eIRZpswG_Gh9KwOG5Oyn0QrTGjv3Wcf_OGxoJDp7U1SmsHua5FYYVESJLK-JDF1Ffmcim0kVcjM6uoCsPK_UAdZAZyUIBkqlQIRatsJC9W3oAso8/s320/IMG_E9397.JPG" width="240" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjm_hfexWCPGN9rUjXXWU9AFxbvrNL8J4M4tFA7Kk65ftr6T_tvQaTmBMU2T6v74sJ2X6ood6CmbiHTioVqeIceeU67rvjCtm5nXwo8I2JF2r09JNXDwq5n_jBNyiU3t1pb16UiDT4e5rw/s1600/IMG_9451.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjm_hfexWCPGN9rUjXXWU9AFxbvrNL8J4M4tFA7Kk65ftr6T_tvQaTmBMU2T6v74sJ2X6ood6CmbiHTioVqeIceeU67rvjCtm5nXwo8I2JF2r09JNXDwq5n_jBNyiU3t1pb16UiDT4e5rw/s320/IMG_9451.jpg" width="240" /></a></span><br />
<span style="font-family: "georgia" , "times new roman" , serif;">Thank you for the texts and messages all along the way. They lifted my spirit and filled my heart and are healing my bruised ego. I valued each and every vote I received and treasure each of your friendships and support for entrusting me to advocate for your children and our community.</span><br />
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg_oUg0v18bCl4jFchdibjdwQDrRKGiv2-hxqkQxjSNkbGQIWKYm9qqARnXlu14YFoPRD_ShyphenhyphencmS-Jl6cCfewHon_CWXJqjRqturmQc6fsezjYnO4hHucDF-iq0qn6aAlPhlDC9sg4hlfw/s1600/IMG_9475.jpg" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg_oUg0v18bCl4jFchdibjdwQDrRKGiv2-hxqkQxjSNkbGQIWKYm9qqARnXlu14YFoPRD_ShyphenhyphencmS-Jl6cCfewHon_CWXJqjRqturmQc6fsezjYnO4hHucDF-iq0qn6aAlPhlDC9sg4hlfw/s320/IMG_9475.jpg" width="240" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgDFDkEGPYzBd6YxdsYHPfGvSt41phZLpe8dKMA4wAK8LHC8Y6_3gxAlotLBBWzEaZV0ddq6-QL2xV0EmLkCL3Ul7xo-cnF7DaFbbI1tXKM5eiEVVtVaI-C8t83eiDBjZNyaXUvDHu059A/s1600/IMG_9396.jpg" style="font-family: georgia, "times new roman", serif; margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1203" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgDFDkEGPYzBd6YxdsYHPfGvSt41phZLpe8dKMA4wAK8LHC8Y6_3gxAlotLBBWzEaZV0ddq6-QL2xV0EmLkCL3Ul7xo-cnF7DaFbbI1tXKM5eiEVVtVaI-C8t83eiDBjZNyaXUvDHu059A/s320/IMG_9396.jpg" width="240" /></a><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">Your vote of support will keep me volunteering and advocating regardless of title or position. I can't begin to thank each of you for your volunteered efforts of support, hosting meet & greets, hosting debate forums, helping me solidify my campaign, offering advice, hosting my yard signs and talking with your neighbors. </span><span style="font-family: "georgia" , "times new roman" , serif;">I am honored to call you my friends.</span><br />
<span style="font-family: "georgia" , "times new roman" , serif; margin-left: 1em; margin-right: 1em;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjdSJ2TOukB78P9vdNQs1SjinbGXEkHLLfrDkstuk5_smy4MFHc8Sejz_5wcUuEL-Rq0efdB_b05jmujQw16Rs4RkWEIF0oyjzK2CIE77DE213qmDg-KRg4j1zUFSeTo61K_xA_uirQ_AY/s1600/IMG_E9472.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1547" data-original-width="1600" height="309" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjdSJ2TOukB78P9vdNQs1SjinbGXEkHLLfrDkstuk5_smy4MFHc8Sejz_5wcUuEL-Rq0efdB_b05jmujQw16Rs4RkWEIF0oyjzK2CIE77DE213qmDg-KRg4j1zUFSeTo61K_xA_uirQ_AY/s320/IMG_E9472.JPG" width="320" /></a></span><br />
<span style="font-family: "georgia" , "times new roman" , serif;">Many people have asked how I am doing. Here are a few of my thoughts on my marathon and running for a public election.</span><br />
<h4 style="text-align: center;">
<span style="color: #38761d; font-family: "georgia" , "times new roman" , serif; font-size: x-large;">Marathon:</span> </h4>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQ-4xV8M6Dp-6t6vLbxztHhRFHD3Opz91FNRzYjQWGImNxX6bzIAQxDSGwUQj19hlAwzPDxvbkZetfqNG2CIjf6Q_wQhxIexOHX8edmQ8nbkGhKcLzAw1-tBSLPOEVRYMSotDn83f8gjM/s1600/IMG_4219.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQ-4xV8M6Dp-6t6vLbxztHhRFHD3Opz91FNRzYjQWGImNxX6bzIAQxDSGwUQj19hlAwzPDxvbkZetfqNG2CIjf6Q_wQhxIexOHX8edmQ8nbkGhKcLzAw1-tBSLPOEVRYMSotDn83f8gjM/s320/IMG_4219.jpg" width="240" /></a></div>
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I sacrificed seeing the 3rd grade musical as I was on my flight to Nashville. Look how cute was this!?</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgxFfdBfl7H5EwpaJchUcOti_a3-dz3m3WKTqrPBUdOgQQyzDa5gUqTTw5dN2MmihW8-6KxmzDmp2KOoxASs-2UTUVfvdnyYNtfmczvot4n2oHdkF8_FU_u4mHBy0YazczUJCYSeDPX_54/s1600/IMG_9319.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgxFfdBfl7H5EwpaJchUcOti_a3-dz3m3WKTqrPBUdOgQQyzDa5gUqTTw5dN2MmihW8-6KxmzDmp2KOoxASs-2UTUVfvdnyYNtfmczvot4n2oHdkF8_FU_u4mHBy0YazczUJCYSeDPX_54/s320/IMG_9319.jpg" width="240" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhWWYxqpdylUy4aOI_g_hFRegMb1vMVyoYE1peZzOQzzEp8zVAz1lHCewOu77aPLa4zvDrsZOFq8gswDx2GG5UsGpXqAQDFZZqbrUPh_XZYnHpyA8G-jhvowf8C-9NKwds5wyETEnujFZQ/s1600/IMG_9324.MP4" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="240" data-original-width="320" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhWWYxqpdylUy4aOI_g_hFRegMb1vMVyoYE1peZzOQzzEp8zVAz1lHCewOu77aPLa4zvDrsZOFq8gswDx2GG5UsGpXqAQDFZZqbrUPh_XZYnHpyA8G-jhvowf8C-9NKwds5wyETEnujFZQ/s320/IMG_9324.MP4" width="256" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiqDCSSY-oUSnf3_s_aflyT4SLUYoP40ANEGEkdObc9n8bQgtZAvbi_pQKAMgT8bUJJqW8663BCW_S9LVKct1u8fqvx700tNOIP9e5CP1p7skKf9cDRqnuICyQJqJevVRO4SmnvE7UlLxE/s1600/IMG_9334.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1203" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiqDCSSY-oUSnf3_s_aflyT4SLUYoP40ANEGEkdObc9n8bQgtZAvbi_pQKAMgT8bUJJqW8663BCW_S9LVKct1u8fqvx700tNOIP9e5CP1p7skKf9cDRqnuICyQJqJevVRO4SmnvE7UlLxE/s320/IMG_9334.jpg" width="240" /></a></div>
Sunrise and happy to run.<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjxxOWaBCY2uuhViZSIp20nVp30MjcGjukoEcXa4BCcQ5sK8-pgwI7wrsA7FOtIRCeKyIs9X3hyphenhyphenVk6ur_HokB-wdsOUG_y2KIySF7xLZAgMKXUKdN483U8ZmogjB6ZsrN93rmf6Hg41OEc/s1600/IMG_9338.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1200" data-original-width="1600" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjxxOWaBCY2uuhViZSIp20nVp30MjcGjukoEcXa4BCcQ5sK8-pgwI7wrsA7FOtIRCeKyIs9X3hyphenhyphenVk6ur_HokB-wdsOUG_y2KIySF7xLZAgMKXUKdN483U8ZmogjB6ZsrN93rmf6Hg41OEc/s320/IMG_9338.JPG" width="320" /></a></div>
My starting group was #16<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEig8U1V3wzZrrc52hgtSISqsMr4e3ng8NZXUqsJArOayWCA_djBeMeAOkkMVqRRYlmbRMpVa9pOvoWcepocYqpmX4ia-5s-AhkZgI9BIGdyQq6ivskb8Yvbd2JioO_sEjuXKKD5muVWosQ/s1600/IMG_9339.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1203" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEig8U1V3wzZrrc52hgtSISqsMr4e3ng8NZXUqsJArOayWCA_djBeMeAOkkMVqRRYlmbRMpVa9pOvoWcepocYqpmX4ia-5s-AhkZgI9BIGdyQq6ivskb8Yvbd2JioO_sEjuXKKD5muVWosQ/s320/IMG_9339.jpg" width="240" /></a></div>
Elvis was hurting around mile 11.<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhX9l6FSm-_Fx0S1_e7bewl-KAsFoVPSEzZLZUCIJXHmKYXrgVw6uv755PZkt5rVJTppuLDdUZVHocUGlqSmImQhOujJDWy9btaoFmCxI8MnFFOSV3vFj-sxo1Byi5txv9S-cR0Wh7EfDI/s1600/IMG_9358.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1200" data-original-width="1600" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhX9l6FSm-_Fx0S1_e7bewl-KAsFoVPSEzZLZUCIJXHmKYXrgVw6uv755PZkt5rVJTppuLDdUZVHocUGlqSmImQhOujJDWy9btaoFmCxI8MnFFOSV3vFj-sxo1Byi5txv9S-cR0Wh7EfDI/s320/IMG_9358.JPG" width="320" /></a></div>
I took a selfie of me on the jumbotron.<br />
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi7Dej03x65buP4zShlK1atdM-UFtblk1qnbyQf4E5cBzSC7zt6YigUX44-ng-s4gDeF38QFGhC_TzbRhb3WPrKlDKjoLzimONwA7qdkkKv3EjVD1EuPb28MYg5cW3mdWSAltAbglVqM1k/s1600/IMG_9364.PNG" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1600" data-original-width="900" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi7Dej03x65buP4zShlK1atdM-UFtblk1qnbyQf4E5cBzSC7zt6YigUX44-ng-s4gDeF38QFGhC_TzbRhb3WPrKlDKjoLzimONwA7qdkkKv3EjVD1EuPb28MYg5cW3mdWSAltAbglVqM1k/s320/IMG_9364.PNG" width="180" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Start of the race</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQJXn3zckTl65zRfw0Ux0-hzfwv0E5w3dvEc5D_aapi3glSQQovk9oF_DrjO0hvkD8-0Nk8iLjfI9nV8gUkouqzLeMB6bg_oW5qKWUp6lqzohsktxZZcLV7e6H9WXfEiHRgJUz9LOxd04/s1600/IMG_9363.PNG" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1600" data-original-width="900" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQJXn3zckTl65zRfw0Ux0-hzfwv0E5w3dvEc5D_aapi3glSQQovk9oF_DrjO0hvkD8-0Nk8iLjfI9nV8gUkouqzLeMB6bg_oW5qKWUp6lqzohsktxZZcLV7e6H9WXfEiHRgJUz9LOxd04/s320/IMG_9363.PNG" width="180" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Finish of the race. My bib read 4Hero Hayden</td></tr>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjxeIx2X6mMD4z4kf322xFlNYhN5pzU2YGFRGjwhCdownDxM3_YsPnB7PNSUEJgVSb1oStuNC-p4qZ8sKB6vyh-zXLjbiW7Dfh7NusvflDxXKUevJE1F1Jp97Oc6GX20_Y5MDtvbjmYArw/s1600/IMG_9365.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjxeIx2X6mMD4z4kf322xFlNYhN5pzU2YGFRGjwhCdownDxM3_YsPnB7PNSUEJgVSb1oStuNC-p4qZ8sKB6vyh-zXLjbiW7Dfh7NusvflDxXKUevJE1F1Jp97Oc6GX20_Y5MDtvbjmYArw/s320/IMG_9365.jpg" width="240" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgpHVbz8XoZSe5phS2QmptNhjud9QbmtNglmhTgWs5_0oBzZexMoCyT33pjJj0fCW0AokMoFoZXdjUxQaEZ6XZdivDt7CigSSN4Hqgx6kCvLx5Kv3ICLljlgJUoXhzAiSlUv3z9NTXq5Sc/s1600/IMG_9362.PNG" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" data-original-height="1600" data-original-width="900" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgpHVbz8XoZSe5phS2QmptNhjud9QbmtNglmhTgWs5_0oBzZexMoCyT33pjJj0fCW0AokMoFoZXdjUxQaEZ6XZdivDt7CigSSN4Hqgx6kCvLx5Kv3ICLljlgJUoXhzAiSlUv3z9NTXq5Sc/s320/IMG_9362.PNG" width="180" /></a></div>
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<span style="font-family: "georgia" , "times new roman" , serif; text-align: left;">Training for a marathon takes time, dedication, sacrifice, and determination. According to Google, <span style="background-color: white; color: #222222;">approximately<b> <a href="https://www.google.com/search?q=what+percentage+of+people+run+marathons&rlz=1C5CHFA_enUS783US784&oq=what+percentage+of+people+run+marathons&aqs=chrome..69i57.6309j0j9&sourceid=chrome&ie=UTF-8">0.5%</a></b><span id="goog_505265921"></span><a href="https://www.blogger.com/"></a><span id="goog_505265922"></span> of the US population has run a marathon.</span><span style="background-color: white; color: #222222;"> </span></span><span style="font-family: "georgia" , "times new roman" , serif; text-align: left;">Once my injuries began intensifying in my distance running, I realized I needed to redefine the framework I put around the criteria to judge and </span><span style="font-family: "georgia" , "times new roman" , serif; text-align: left;">view my happiness and success. </span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjR3f6xZ4rrHLX9hU6R_5lWzFw4_kxmy-0TSg1f21rqcs7SFT9gK3nMo0WX4T7C4HboDoyP7amWZs47Al9WoZQs7g99sIL7R3g3OpQBZMi6l-ZbFb9pi5l_9gIJ_H_RtDj3uXMBEdt4ABU/s1600/IMG_9367.PNG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="900" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjR3f6xZ4rrHLX9hU6R_5lWzFw4_kxmy-0TSg1f21rqcs7SFT9gK3nMo0WX4T7C4HboDoyP7amWZs47Al9WoZQs7g99sIL7R3g3OpQBZMi6l-ZbFb9pi5l_9gIJ_H_RtDj3uXMBEdt4ABU/s320/IMG_9367.PNG" width="180" /></a></div>
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It was a pleasure getting to know a new city well by covering it on foot for 27 miles. I love you Nashville, but your hills are beautiful and exhausting.</div>
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There were just over 2,000 runners to run the marathon of over 40,000 runners registered for the race.</div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgemSPY8IwwfRTOpJncT1nDbjTWk8787AhWYoCixTRgRQjutuGjcGuspD7xVOZh7oqw20LSxB3l5y_pPLRXFlEFIKRnE9QvbUCKGhFGANNoWE3UlmI5x6i_KCvFDpXWK3ztWLW68WYunl0/s1600/IMG_E9338.JPG" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1200" data-original-width="1600" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgemSPY8IwwfRTOpJncT1nDbjTWk8787AhWYoCixTRgRQjutuGjcGuspD7xVOZh7oqw20LSxB3l5y_pPLRXFlEFIKRnE9QvbUCKGhFGANNoWE3UlmI5x6i_KCvFDpXWK3ztWLW68WYunl0/s320/IMG_E9338.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Perfect weather start</td></tr>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgphgzeIsfBhQzERRhAGuUiVUvo5E_se5NnVIeO1rp2iHGBKLQdG3ItJpapwmlBnueoeIQ9f8J_jo0xLU9H_nkJEar5fAoL_GKfN9rvwf9ManAfzb5kiM4pIBrcgdklfc5fx4h5gD_FEz8/s1600/IMG_E9368.JPG" style="margin-left: 1em; margin-right: 1em;"><br /><img border="0" data-original-height="1285" data-original-width="1125" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgphgzeIsfBhQzERRhAGuUiVUvo5E_se5NnVIeO1rp2iHGBKLQdG3ItJpapwmlBnueoeIQ9f8J_jo0xLU9H_nkJEar5fAoL_GKfN9rvwf9ManAfzb5kiM4pIBrcgdklfc5fx4h5gD_FEz8/s320/IMG_E9368.JPG" width="280" /></a></div>
<span style="font-family: "georgia" , "times new roman" , serif;"><br />Although I know lessons are learned from failure as well as success, I continue to pray for success and to earn wisdom. Over the years, I have learned that my many struggles and failures in finding medical answers have kept me humble and submissive to the Lord's will.</span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">I found comfort in the blessings from the power of prayer that allowed me to complete the entire marathon free of pain. You too are entitled to the call upon the power and grace of the Lord in prayer. </span><br />
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<span style="color: #38761d; font-family: "georgia" , "times new roman" , serif; font-size: x-large;">Lessons in losing a public election:</span></h4>
<span style="background-color: white; font-family: "georgia" , "times new roman" , serif;">I am proud to have participated in the process of running for a public election. According to <a href="https://www.politico.com/story/2018/03/08/women-rule-midterms-443267" target="_blank">Politico</a>, t</span><span style="background-color: white; font-family: "georgia" , "times new roman" , serif;">he </span><span style="background-color: white; font-family: "georgia" , "times new roman" , serif;">2018 election cycle is being dubbed by some as the new </span><br />
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<span style="background-color: white;"><span style="font-family: "georgia" , "times new roman" , serif;"><b><span style="font-size: large;">“Year of the Woman”. </span></b> </span></span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgrBSVjYcaPDrD8ReCAVCg9YdRN_j87szYaI1jfuN1X5DyuWOvyqq0YlVhWTWG_l-9oLSeO2EOuLqpksRMjqtQb8N5yIQuh7J7qsKv24ilKg_erzJ0WjjJ5uAtBDDhnF2hulacCqZAtWD0/s1600/IMG_E9375.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1191" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgrBSVjYcaPDrD8ReCAVCg9YdRN_j87szYaI1jfuN1X5DyuWOvyqq0YlVhWTWG_l-9oLSeO2EOuLqpksRMjqtQb8N5yIQuh7J7qsKv24ilKg_erzJ0WjjJ5uAtBDDhnF2hulacCqZAtWD0/s320/IMG_E9375.JPG" width="238" /></a></div>
<span style="background-color: white;"><span style="font-family: "georgia" , "times new roman" , serif;">Lakeway elected its first woman Mayor and both LTISD school board candidates elected were women whom I respect.</span></span><br />
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<li><span style="font-family: "georgia" , "times new roman" , serif;"><span style="background-color: white; font-family: "georgia" , "times new roman" , serif;"><span style="background-color: transparent; color: #222222; font-family: "georgia" , "times new roman" , serif;">Today, on Mother's Day, </span><a href="http://www.journalgazette.net/opinion/columns/20180513/a-message-for-women-represent" target="_blank">Indiana's Journal Gazzett</a> said, "t</span><span style="background-color: white; color: #333333;"><span style="font-family: "georgia" , "times new roman" , serif;">his message is for two groups o</span><span style="font-family: "georgia" , "times new roman" , serif;">f women: Those who want to run for office, and those who have previously run and lost. <b>The message is simple and urgent: </b></span></span></span><span style="font-family: "georgia" , "times new roman" , serif;"><b>Run, Jane, run."</b></span></li>
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<li><span style="color: black; font-family: "times"; font-size: 18px;"><span style="color: #222222; font-family: "roboto" , "helvetica neue" , "helvetica" , "arial" , sans-serif;"><span style="font-family: "georgia" , "times new roman" , serif;">Today, on Mother's Day, </span><a href="http://www.foxnews.com/opinion/2018/05/13/on-mothers-day-be-thankful-women-have-right-to-vote-but-its-worthless-if-dont-use-it.html" style="font-family: Georgia, "Times New Roman", serif;" target="_blank">Fox News</a><span style="font-family: "georgia" , "times new roman" , serif;">'s headline reads, "</span></span></span><span style="color: #222222; font-family: "georgia" , "times new roman" , serif; letter-spacing: -1.2px;">On Mother's Day be thankful women have the right to vote -- But it's worthless if we don't use it."</span></li>
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<span style="font-family: "georgia" , "times new roman" , serif;"><span style="background-color: white; color: #222222;"><br /></span></span>
<span style="font-family: "georgia" , "times new roman" , serif;"><span style="background-color: white; color: #222222;">According to Pew Research, Women are still badly underrepresented in elected offices with less than </span><a href="http://www.pewresearch.org/fact-tank/2014/09/03/who-runs-for-office-a-profile-of-the-2/" target="_blank"><b>2%</b></a><span style="background-color: white; color: #222222;"> of the total population ever running for office and significantly fewer women holding elected positions.</span></span><br />
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<span style="font-family: "georgia" , "times new roman" , serif;">My campaigning shortcomings:</span></div>
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<ul>
<li>Donations: I ran on personal principle and without donations as I firmly believed that donations should go to community charities and not to my campaign propaganda. This was a losing strategy for anyone wanting a career in politics:)</li>
<li>Ballot Placement: Because I waited until the end of the filing period to formally declare what position I would run for on school board, I was listed last on the ballot. I should have declared immediately when I filed. I had believed that placement was random.</li>
<li>Non-partisan Office: I felt strongly that as a school board candidate representing the entire district, you should not have specific endorsements from political parties. I continue to work with both sides of the aisle at the Texas Capitol to advocate for the most vulnerable medically fragile children. I believe a true agent of change will fight moral issues, not partisan issues. </li>
<li><span style="color: #222222; font-family: "georgia" , "times new roman" , serif; letter-spacing: -1.2px;">Campaign Base: When you are a member of a minority group, developing </span><span style="color: #222222; font-family: "georgia" , "times new roman" , serif; letter-spacing: -1.2px;">your voter base takes a village of support. You have to engage that village and expand your reach to the majority and the older populations that turn out to vote.</span></li>
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<span style="background-color: white; color: #222222; font-family: "georgia" , "times new roman" , serif; letter-spacing: -1.2px;">While we are all very busy, I have learned that continued service and fearless advocacy is what will help shape the future of the communities that we live in. #govote! </span></div>
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Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com0tag:blogger.com,1999:blog-5100589266453048503.post-16494795583087486272017-11-23T23:15:00.001-06:002019-11-08T09:06:04.483-06:00Gratitude #GivingTuesday#GivingTuesday If you are looking to make a contribution to charity this year, I am simply putting an alphabetical list together for you to pass along. <br />
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Some of these charities were in our life for a brief moment, while others remain a huge part of our lives. Some also receive funding from federal and other large sources, while others are grassroots startups. Each serves a very specific purpose and none of these charities overlap in the purpose they serve. <br />
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I encourage you to learn about each of these great organizations for yourself and pass along this list of resources to any family/child that might be looking for a connection in our community:<br />
<div style="-webkit-text-stroke-color: rgb(74, 98, 145); -webkit-text-stroke-width: initial; color: #4a6291; font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; text-align: center;">
<b>Charities</b></div>
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<td style="border-color: #5b87b9 #b6cbdc #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 1.0px 1.0px 1.0px; height: 28.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 399.6px;" valign="top"><div style="-webkit-text-stroke-color: rgb(74, 98, 145); -webkit-text-stroke-width: initial; color: #4a6291; font-family: "Helvetica Neue"; font-size: 11px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none;">Athletes Helping Athletes- National</span></div>
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<td style="border-color: #5b87b9 transparent #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 0.0px 1.0px 1.0px; height: 28.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 348.2px;" valign="top"><div style="-webkit-text-stroke-color: rgb(2, 30, 170); -webkit-text-stroke-width: initial; color: #021eaa; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none; text-decoration: underline;"><a href="http://www.roadrunnersports.com/rrs/content/content1.jsp?contentId=5600004">http://www.roadrunnersports.com/rrs/content/content1.jsp?contentId=5600004</a></span></div>
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<span style="font-kerning: none;">Austin Miracle League</span></div>
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<span style="font-kerning: none; text-decoration: underline;"><a href="http://www.austinmiracleleague.org/">http://www.austinmiracleleague.org</a></span></div>
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<span style="font-kerning: none;">Camp John Marc- Texas</span></div>
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<td style="border-color: #b6cbdc transparent #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 0.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 348.2px;" valign="top"><div style="-webkit-text-stroke-color: rgb(2, 30, 170); -webkit-text-stroke-width: initial; color: #021eaa; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none; text-decoration: underline;"><a href="https://www.campjohnmarc.org/">https://www.campjohnmarc.org</a></span></div>
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<span style="font-kerning: none;">Cheyanna’s Champions 4 Children (CC4C)- Austin</span></div>
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<td style="background-color: #f2f6f7; border-color: #b6cbdc transparent #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 0.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 348.2px;" valign="top"><div style="-webkit-text-stroke-color: rgb(2, 30, 170); -webkit-text-stroke-width: initial; color: #021eaa; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none; text-decoration: underline;"><a href="http://cc4c.org/">http://cc4c.org</a></span></div>
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<span style="font-kerning: none;">Dell Children’s Medical Center- Miracle Network</span></div>
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<td style="border-color: #b6cbdc transparent #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 0.0px 1.0px 1.0px; height: 28.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 348.2px;" valign="top"><div style="-webkit-text-stroke-color: rgb(2, 30, 170); -webkit-text-stroke-width: initial; color: #021eaa; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none; text-decoration: underline;"><a href="https://www.dellchildrens.net/support-dell-childrens/get-involved/childrens-miracle-network/">https://www.dellchildrens.net/support-dell-childrens/get-involved/childrens-miracle-network/</a></span></div>
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<span style="font-kerning: none;">Disability Rights Texas</span></div>
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<td style="background-color: #f2f6f7; border-color: #b6cbdc transparent #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 0.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 348.2px;" valign="top"><div style="-webkit-text-stroke-color: rgb(2, 30, 170); -webkit-text-stroke-width: initial; color: #021eaa; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none; text-decoration: underline;"><a href="https://www.disabilityrightstx.org/">https://www.disabilityrightstx.org</a></span></div>
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<td style="border-color: #b6cbdc #b6cbdc #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 1.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 399.6px;" valign="top"><div style="-webkit-text-stroke-color: rgb(74, 98, 145); -webkit-text-stroke-width: initial; color: #4a6291; font-family: "Helvetica Neue"; font-size: 11px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none;">Lake Travis Lions Club</span></div>
</td>
<td style="border-color: #b6cbdc transparent #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 0.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 348.2px;" valign="top"><div style="-webkit-text-stroke-color: rgb(2, 30, 170); -webkit-text-stroke-width: initial; color: #021eaa; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none; text-decoration: underline;"><a href="https://www.laketravislions.org/">https://www.laketravislions.org</a></span></div>
</td>
</tr>
<tr>
<td style="background-color: #f2f6f7; border-color: #b6cbdc #b6cbdc #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 1.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 399.6px;" valign="top"><div style="-webkit-text-stroke-color: rgb(74, 98, 145); -webkit-text-stroke-width: initial; color: #4a6291; font-family: "Helvetica Neue"; font-size: 11px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none;">Life Rolls On- National</span></div>
</td>
<td style="background-color: #f2f6f7; border-color: #b6cbdc transparent #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 0.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 348.2px;" valign="top"><div style="-webkit-text-stroke-color: rgb(2, 30, 170); -webkit-text-stroke-width: initial; color: #021eaa; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none; text-decoration: underline;"><a href="https://liferollson.org/">https://liferollson.org</a></span></div>
</td>
</tr>
<tr>
<td style="border-color: #b6cbdc #b6cbdc #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 1.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 399.6px;" valign="top"><div style="-webkit-text-stroke-color: rgb(74, 98, 145); -webkit-text-stroke-width: initial; color: #4a6291; font-family: "Helvetica Neue"; font-size: 11px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none;">Little Lobbyists- National</span></div>
</td>
<td style="border-color: #b6cbdc transparent #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 0.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 348.2px;" valign="top"><div style="-webkit-text-stroke-color: rgb(2, 30, 170); -webkit-text-stroke-width: initial; color: #021eaa; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none; text-decoration: underline;"><a href="https://www.littlelobbyists.org/">https://www.littlelobbyists.org</a></span></div>
</td>
</tr>
<tr>
<td style="background-color: #f2f6f7; border-color: #b6cbdc #b6cbdc #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 1.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 399.6px;" valign="top"><div style="-webkit-text-stroke-color: rgb(74, 98, 145); -webkit-text-stroke-width: initial; color: #4a6291; font-family: "Helvetica Neue"; font-size: 11px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none;">Make A Wish Central & South Texas</span></div>
</td>
<td style="background-color: #f2f6f7; border-color: #b6cbdc transparent #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 0.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 348.2px;" valign="top"><div style="-webkit-text-stroke-color: rgb(2, 30, 170); -webkit-text-stroke-width: initial; color: #021eaa; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none; text-decoration: underline;"><a href="http://cstx.wish.org/about-us">http://cstx.wish.org/about-us</a></span></div>
</td>
</tr>
<tr>
<td style="border-color: #b6cbdc #b6cbdc #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 1.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 399.6px;" valign="top"><div style="-webkit-text-stroke-color: rgb(74, 98, 145); -webkit-text-stroke-width: initial; color: #4a6291; font-family: "Helvetica Neue"; font-size: 11px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none;">Morgan’s Wonderland- San Antonio</span></div>
</td>
<td style="border-color: #b6cbdc transparent #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 0.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 348.2px;" valign="top"><div style="-webkit-text-stroke-color: rgb(2, 30, 170); -webkit-text-stroke-width: initial; color: #021eaa; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none; text-decoration: underline;"><a href="http://www.morganswonderland.com/">http://www.morganswonderland.com</a></span></div>
</td>
</tr>
<tr>
<td style="background-color: #f2f6f7; border-color: #b6cbdc #b6cbdc #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 1.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 399.6px;" valign="top"><div style="-webkit-text-stroke-color: rgb(74, 98, 145); -webkit-text-stroke-width: initial; color: #4a6291; font-family: "Helvetica Neue"; font-size: 11px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none;">Protect TX Fragile Kids (PTFK)</span></div>
</td>
<td style="background-color: #f2f6f7; border-color: #b6cbdc transparent #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 0.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 348.2px;" valign="top"><div style="-webkit-text-stroke-color: rgb(2, 30, 170); -webkit-text-stroke-width: initial; color: #021eaa; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none; text-decoration: underline;"><a href="http://www.protecttxfragilekids.org/">http://www.protecttxfragilekids.org</a></span></div>
</td>
</tr>
<tr>
<td style="border-color: #b6cbdc #b6cbdc #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 1.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 399.6px;" valign="top"><div style="-webkit-text-stroke-color: rgb(74, 98, 145); -webkit-text-stroke-width: initial; color: #4a6291; font-family: "Helvetica Neue"; font-size: 11px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none;">Red Arena- Austin</span></div>
</td>
<td style="border-color: #b6cbdc transparent #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 0.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 348.2px;" valign="top"><div style="-webkit-text-stroke-color: rgb(2, 30, 170); -webkit-text-stroke-width: initial; color: #021eaa; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none; text-decoration: underline;"><a href="http://www.redarena.org/">http://www.redarena.org</a></span></div>
</td>
</tr>
<tr>
<td style="background-color: #f2f6f7; border-color: #b6cbdc #b6cbdc #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 1.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 399.6px;" valign="top"><div style="-webkit-text-stroke-color: rgb(74, 98, 145); -webkit-text-stroke-width: initial; color: #4a6291; font-family: "Helvetica Neue"; font-size: 11px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none;">Ronald McDonald House Charities Central Texas</span></div>
</td>
<td style="background-color: #f2f6f7; border-color: #b6cbdc transparent #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 0.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 348.2px;" valign="top"><div style="-webkit-text-stroke-color: rgb(2, 30, 170); -webkit-text-stroke-width: initial; color: #021eaa; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none; text-decoration: underline;"><a href="https://rmhc-ctx.org/">https://rmhc-ctx.org</a></span></div>
</td>
</tr>
<tr>
<td style="border-color: #b6cbdc #b6cbdc #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 1.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 399.6px;" valign="top"><div style="-webkit-text-stroke-color: rgb(74, 98, 145); -webkit-text-stroke-width: initial; color: #4a6291; font-family: "Helvetica Neue"; font-size: 11px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none;">Shriners Hospital- National</span></div>
</td>
<td style="border-color: #b6cbdc transparent #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 0.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 348.2px;" valign="top"><div style="-webkit-text-stroke-color: rgb(2, 30, 170); -webkit-text-stroke-width: initial; color: #021eaa; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none; text-decoration: underline;"><a href="https://www.shrinershospitalsforchildren.org/shc">https://www.shrinershospitalsforchildren.org/shc</a></span></div>
</td>
</tr>
<tr>
<td style="background-color: #f2f6f7; border-color: #b6cbdc #b6cbdc #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 1.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 399.6px;" valign="top"><div style="-webkit-text-stroke-color: rgb(74, 98, 145); -webkit-text-stroke-width: initial; color: #4a6291; font-family: "Helvetica Neue"; font-size: 11px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none;">Special Olympics Texas</span></div>
</td>
<td style="background-color: #f2f6f7; border-color: #b6cbdc transparent #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 0.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 348.2px;" valign="top"><div style="-webkit-text-stroke-color: rgb(2, 30, 170); -webkit-text-stroke-width: initial; color: #021eaa; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none; text-decoration: underline;"><a href="http://www.sotx.org/">http://www.sotx.org</a></span></div>
</td>
</tr>
<tr>
<td style="border-color: #b6cbdc #b6cbdc #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 1.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 399.6px;" valign="top"><div style="-webkit-text-stroke-color: rgb(74, 98, 145); -webkit-text-stroke-width: initial; color: #4a6291; font-family: "Helvetica Neue"; font-size: 11px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none;">Spina Bifida Association- National</span></div>
</td>
<td style="border-color: #b6cbdc transparent #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 0.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 348.2px;" valign="top"><div style="-webkit-text-stroke-color: rgb(2, 30, 170); -webkit-text-stroke-width: initial; color: #021eaa; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none; text-decoration: underline;"><a href="http://spinabifidaassociation.org/">http://spinabifidaassociation.org</a></span></div>
</td>
</tr>
<tr>
<td style="background-color: #f2f6f7; border-color: #b6cbdc #b6cbdc #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 1.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 399.6px;" valign="top"><div style="-webkit-text-stroke-color: rgb(74, 98, 145); -webkit-text-stroke-width: initial; color: #4a6291; font-family: "Helvetica Neue"; font-size: 11px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none;">Spina Bifida Texas</span></div>
</td>
<td style="background-color: #f2f6f7; border-color: #b6cbdc transparent #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 0.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 348.2px;" valign="top"><div style="-webkit-text-stroke-color: rgb(2, 30, 170); -webkit-text-stroke-width: initial; color: #021eaa; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none; text-decoration: underline;"><a href="http://www.sbtx.org/">http://www.sbtx.org</a></span></div>
</td>
</tr>
<tr>
<td style="border-color: #b6cbdc #b6cbdc #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 1.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 399.6px;" valign="top"><div style="-webkit-text-stroke-color: rgb(74, 98, 145); -webkit-text-stroke-width: initial; color: #4a6291; font-family: "Helvetica Neue"; font-size: 11px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none;">Texas Parent to Parent</span></div>
</td>
<td style="border-color: #b6cbdc transparent #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 0.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 348.2px;" valign="top"><div style="-webkit-text-stroke-color: rgb(2, 30, 170); -webkit-text-stroke-width: initial; color: #021eaa; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none; text-decoration: underline;"><a href="https://www.txp2p.org/">https://www.txp2p.org</a></span></div>
</td>
</tr>
<tr>
<td style="background-color: #f2f6f7; border-color: #b6cbdc #b6cbdc #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 1.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 399.6px;" valign="top"><div style="-webkit-text-stroke-color: rgb(74, 98, 145); -webkit-text-stroke-width: initial; color: #4a6291; font-family: "Helvetica Neue"; font-size: 11px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none;">The Lion League- Texas</span></div>
</td>
<td style="background-color: #f2f6f7; border-color: #b6cbdc transparent #b6cbdc #b6cbdc; border-style: solid; border-width: 1.0px 0.0px 1.0px 1.0px; height: 14.0px; padding: 2.0px 2.0px 2.0px 2.0px; width: 348.2px;" valign="top"><div style="-webkit-text-stroke-color: rgb(2, 30, 170); -webkit-text-stroke-width: initial; color: #021eaa; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal;">
<span style="font-kerning: none; text-decoration: underline;"><a href="https://thelionleague.org/">https://thelionleague.org</a></span></div>
</td>
</tr>
</tbody>
</table>
<div style="-webkit-text-stroke-color: rgb(74, 98, 145); -webkit-text-stroke-width: initial; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; min-height: 14px;">
</div>
<div style="-webkit-text-stroke-color: rgb(74, 98, 145); -webkit-text-stroke-width: initial; font-family: Helvetica; font-size: 12px; font-stretch: normal; line-height: normal; min-height: 14px;">
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Recently, I read commentary about how many cents of each dollar donated actually goes to charity and not administrative profits. The commentary was disheartening. It can be discouraging when you think that the money that you give isn't being put to good use. These charities put your donations to good use.<br />
<br />
We have been extremely blessed the past eight years by many charities that do mighty good works. Due to Hayden's many surgeries and diagnosis, we have had the opportunity to meet some of the best human beings our society has to offer. We will have a lifetime of indebtedness and gratitude for the goodness that has been shared with us.<br />
<br />
<span style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;">On this day of Thanksgiving, we are very thankful. Today we celebrated a second anniversary from graduating from our 7 weeks at feeding therapy in Baltimore at John's Hopkins Childrens' hospital, Kennedy Kreiger. We all had dinner together and felt true joy that can only be understood by someone that has worked on feeding issues for 8 years. Happy Thanksgiving to you all!</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi30Z7q4ex_lVTfWCwL_0rj7Kt9MmI4DKb6j6Sv4XTsxvgcrwMaSsA2yJo8FLDpemkQJTUaUQM7PkEgpgRILF-1WXHE_-3ktSVVwVAWJRUjp0h9oYlANuFoG654cEEpyz3i-KHA2i-tZIg/s1600/IMG_0621.JPG" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="213" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi30Z7q4ex_lVTfWCwL_0rj7Kt9MmI4DKb6j6Sv4XTsxvgcrwMaSsA2yJo8FLDpemkQJTUaUQM7PkEgpgRILF-1WXHE_-3ktSVVwVAWJRUjp0h9oYlANuFoG654cEEpyz3i-KHA2i-tZIg/s320/IMG_0621.JPG" width="320" /></a><br />
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Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com1tag:blogger.com,1999:blog-5100589266453048503.post-38828507592493495232017-07-03T15:37:00.001-05:002019-11-08T09:06:48.931-06:00MSNBC Medicaid Florida Francis Rooney Texas Scott Adrienne Trigg by Rich...<iframe allowfullscreen="" frameborder="0" height="270" src="https://www.youtube.com/embed/vN2v4JCiyyo" width="480"></iframe>Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com0tag:blogger.com,1999:blog-5100589266453048503.post-66728062678609070192017-04-26T11:34:00.002-05:002019-11-08T09:10:01.281-06:00CC4C.org<div style="text-align: center;">
<span style="background-color: white;"><span style="font-family: "open sans" , "arial" , sans-serif;"><span style="font-size: 14px;">We were honored once again by CC4C by doing a video of a day in the life of Hayden. This was our Thursday with OT, PT, medical supplies and a state football ring ceremony.</span></span></span><br />
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<span style="font-family: "open sans" , "arial" , sans-serif;"><span style="background-color: white;"><span style="font-size: 14px;">The video was masterfully done by<a href="http://www.relifefilms.com/corporate/"> relifefilms</a> and the most beautifully touching witnesses of our family and how CC4C has blessed us. Thank you to all who have played a part in it. My testimony of CC4C is that they have been the most resourceful group we have ever been supported by as a whole family. </span></span></span></div>
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<span style="font-family: "open sans" , "arial" , sans-serif;"><span style="background-color: white;"><span style="font-size: 14px;">CC4C has taken on the role of acting as community social workers made up of superstars, rock stars, gold medal athletes and state champions. Collectively they have helped us network to avenues we didn't know existed to help us find help outside of what we had researched ourselves. </span></span></span></div>
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<span style="font-family: "open sans" , "arial" , sans-serif;"><span style="background-color: white;"><span style="font-size: 14px;">They taught us new resources for technical help and rare medical studies that are tough to find and apply for without the help of navigation and education to help us find help ourselves. Their cause vocally gives credit that it was called of God to the formation. These individuals are </span></span><span style="font-size: 14px;">magnified in their incredible talents to bless our lives and so many others. If you would like to financially support them, they would love your help. If you know of a family struggling for a diagnosis, have them apply. It has been more than we ever expected.</span></span></div>
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<span style="font-family: "open sans" , "arial" , sans-serif;"><span style="font-size: 14px;"><u><b>To learn more about Champions for Children see the links below:</b></u></span></span></div>
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<span style="background-color: white; font-family: "open sans" , "arial" , sans-serif; font-size: 14px;">CC4C has a mission statement. From us, I would say, mission accomplished!</span></div>
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<span style="background-color: white;"><span style="font-family: "open sans" , "arial" , sans-serif;"><span style="font-size: 14px;"> <a href="http://cc4c.org/our-mission/">http://cc4c.org/our-mission/</a></span></span></span></div>
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<span style="background-color: white;"><span style="font-family: "open sans" , "arial" , sans-serif;"><span style="font-size: 14px;">This season, CC4C focused on 10 children, pairing them up with a CC4C alumnus/alumna champion child, a champion teammate, and a high school team who, together, create a team of inspiration and support as they race toward their recovery finish line. </span></span></span></div>
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<span style="background-color: white;"><span style="font-family: "open sans" , "arial" , sans-serif;"><span style="font-size: 14px;">You can read their bios here: <a href="http://cc4c.org/2016-17-champion-children/">http://cc4c.org/2016-17-champion-children/</a></span></span></span></div>
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<span style="border: 0px; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;">The champion programs at CC4C form the primary mode of inspiration that the foundation utilizes to carry out its mission. </span></div>
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The <strong style="border: 0px; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;"><a href="http://cc4c.org/athletes/">Teammates</a> </strong>team up with each child and run a race in their honor, giving them the medal they receive at the annual Medal Giving Ceremony. CB Hudson is Hayden's rockstar teammate.</div>
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The<a href="http://cc4c.org/high-school-teams/"> <strong style="border: 0px; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;">High School Teams</strong></a> welcome the children into their programs with open arms, giving them opportunities that they never imagined having due to their conditions. Hayden's team has been <a href="http://www.laketravisfootball.com/news_article/show/766675?referrer_id=3200952-carter-news">Lake Travis Football</a>.</div>
Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com1tag:blogger.com,1999:blog-5100589266453048503.post-42811509310051269912017-03-29T18:04:00.000-05:002017-03-29T18:04:09.404-05:005 months into Texas Managed Care Organizations from Medicaid <div class="separator" style="clear: both; text-align: center;">
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Testimony over Senate Bill 1922 "step therapy" for prescriptions</div>
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Testifying has been exhausting and emotionally personal. The kids will hopefully learn from this experience how to advocate for themselves and people of all abilities. Hanna and Hayden will get to be House pages next week for Representative Workman. We are also very grateful to Senator Watson for the opportunity to be Senate pages this last March 8th. <br />
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgGpXW-OryK4H8q-v5_eBXIezP4tz5jQgw5ltyUCd1ThYHhbrCuiDpmJbcKUS7AB2NALZazhA15KX185REaAIxhpk-aV0x7q0Brz2RVbhtpXD8XAcOSIfQWWwBvboh5jPer2k4pNqMUnWQ/s1600/IMG_5222.jpg" imageanchor="1"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiJBt9eFJ8aIIfXjKCk8GCQ-1oUndTS6I49xY7F_tfZvHP2hhkHviWi8AT-bWzqW_ArvOFQ98TIAcLYHMDAk2IqdKPkbZFwkVYp4PATmc_RI52I5S8k6xI56mrJd7qRMxDh7ZgkVcl9ZWk/s1600/IMG_5196.jpg" imageanchor="1"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiJBt9eFJ8aIIfXjKCk8GCQ-1oUndTS6I49xY7F_tfZvHP2hhkHviWi8AT-bWzqW_ArvOFQ98TIAcLYHMDAk2IqdKPkbZFwkVYp4PATmc_RI52I5S8k6xI56mrJd7qRMxDh7ZgkVcl9ZWk/s320/IMG_5196.jpg" width="240" /></a><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgGpXW-OryK4H8q-v5_eBXIezP4tz5jQgw5ltyUCd1ThYHhbrCuiDpmJbcKUS7AB2NALZazhA15KX185REaAIxhpk-aV0x7q0Brz2RVbhtpXD8XAcOSIfQWWwBvboh5jPer2k4pNqMUnWQ/s320/IMG_5222.jpg" width="240" /><br />
They have the professional pictures coming soon for the Senate Media.<br />
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Testimony to Senator Nelson Finance</div>
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Testimony to Senate Committee about MCO Roll out problems</div>
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Testimony to HHSC prior to MCO roll out from Medicaid</div>
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<span style="font-family: "helvetica"; font-size: 12px;">New legislation is required this session if we have any hope of fixing the many issues that have been placed upon fragile families due to the transition of Medicaid run by the state department to being managed by for profit managed care organizations.. My work is not done and I am glad I do not have to stand alone. I am fortunate to live in Austin to have the convenience of making the day trip to speak to the politicians. Many families travel from all over the state at their own personal expense of time and sacrifice to attend these meetings. We are families of vulnerable children of all races, socioeconomic backgrounds, and religions. We are a grassroots group of mothers and fathers of fragile children who have to rise up and speak out. #txlege </span><a href="http://www.protecttxfragilekids.org/the-problem-with-star-kids.html">Protect TX Fragile Kids</a><br />
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Things to know:<br />
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<li>Managed Care Organizations/Insurance Companies receive tens of billions of state dollars in their contracts</li>
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<li>Managed Care Organizations/Insurance Companies are for profit and get to keep their identified "cost savings" that happens to be <u>tax payer money</u></li>
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<li>Texas wants the federal medicaid <u>block grants</u> so they can "manage" the Medicaid $ giving it to the MCOs.</li>
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<li>MCOs have their own <u>prescription formularies</u> and they want to control what medicines are approved and save cost by making patients fail generic drugs prior to allowing name brands</li>
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<li>MCOs do not want to pay for many of the standard of care <u>images and tests</u> that doctors require for high needs patients</li>
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<li>MCOs do not reimburse pay for <u>therapies, equipment and supplies </u>at the disclosed Medicaid rate and force many companies out of business</li>
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There are an awful lot of ways to defraud a multi-billion dollar program and that is why so many companies are turning up to offer to put their hand in the pot. <br />
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The next few weeks are vital to our family as we try and have influence over responsible careful legislation before the end in May. The laws that are passed will be in effect for the next couple of years and directly effect our family on a daily basis. Since most legislators at the capital hear from representatives of insurance companies, doctors, hospitals and pharmaceutical professionals, it is important for them to hear how policy effects families and individuals. It has been a crash course to learn how to navigate politics and the capital. If you would like to see the link to the Bills that I am following, click below: <a href="https://legiscan.com/reports/wfueeqd3">Medicaid Bills</a><br />
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Please know I always welcome company at the capital for any type of support.Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com0tag:blogger.com,1999:blog-5100589266453048503.post-36694201879124288802017-03-19T19:51:00.003-05:002017-03-19T20:29:19.987-05:00Spring Break 2017 Charleston This year marks our second annual spring break road trip to Charleston, South Carolina. Four days of driving with five days of vacation.<br />
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjl042FuKo3y0EB1vQKrgeM1wUJUueycMi8HrnZHFTuPC4dI7w3bfro4POGrXMx0yEUX9fC0f5fapaAhg5A1YLVHm_78cUGRsomtNiG2vwv7QvJSk46Mbuy5_ynXuOv_Nt1kH2vMXyjPEA/s1600/IMG_5240.PNG" imageanchor="1"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjl042FuKo3y0EB1vQKrgeM1wUJUueycMi8HrnZHFTuPC4dI7w3bfro4POGrXMx0yEUX9fC0f5fapaAhg5A1YLVHm_78cUGRsomtNiG2vwv7QvJSk46Mbuy5_ynXuOv_Nt1kH2vMXyjPEA/s320/IMG_5240.PNG" width="180" /></a> With all our stops we added a lovely 2-3 hours each day. I hate packing and loading the kids for the trip, but once we are going, it is fun to have all the kids locked and loaded full of movies and high quality gas station snacks.<br />
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It was surprising just how beautiful Alabama's rolling hills and spring flowers are. The entire trip is beautiful should you ever make the trip. Leaving 80 degree weather to go to the beach that never got out of the 50s was a shock. Good thing we brought our winter clothes to the beach.<br />
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This was our first venture with the <a href="https://www.gofreewheel.com/" target="_blank">free wheel attachment</a> for the wheelchair. It worked great on the hard sand but not so great on soft sand. I guess we put too much pressure on it and it would bend the footplate. I figure, beach wheelchairs with fat tires are still the best if you can rent them at your beach. Since it wasn't available at most beaches, this gives us some option as it lifts the front casters if you look closely. </div>
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Low tide at Kiawa island with lots of jelly fish and buried treasure (like Scott's wedding ring that he lost and I found)</div>
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Hanna racing to pick up sand dollars and shells</div>
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The beautiful Ravenel bridge connecting Charleston to Mt. Pleasant</div>
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Plenty of things to do even in the cold in Charleston. The kids loved the aquarium.</div>
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Hanna loved touching the star fish.</div>
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Garrett loved the lego exhibits the most.</div>
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Mom always knows how to make new friends</div>
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This time Hayden wasn't so sure he wanted to be brave. Garrett sure did.</div>
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So we had never seen a turtle sit like this in the sun?</div>
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The plantations are amazing to visit in Charleston. They are sacred places and have been preserved and beautified. The kids learned a lot about slavery, Black, English, French and Native American history. </div>
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It took us touring the plantation and the zoo all day before were finally made it to the "pirate ship" that the kids had been looking forward to.</div>
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Garrett became obsessed with the canons and how they protected the plantation and the forts in the area.</div>
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Hanna and I became obsessed with the flowers and selfies with them.</div>
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The gardens at the plantations are amazing.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZnrLeZL-sYFlDPER1shWukZ1DLVJVT8xX5mDlK4JqVndJbeY2KSX_xOa3_BtNxRTMtzE698h4xDz9JkgtnQA5xravDULS37PrQFPO7xsgDiCyYZ7xulRXZVt83IsbgVEk_JAiQ59Pnfw/s1600/IMG_5342.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiqVM0-4Ap8LxspqleudvOjuX9EqwL-f22qq0SmTv2i9vIZFKr8oRO_kYhfSoh8pdMK-j_6ehgEVvEI6-Klx5YJLkbl8lDQXaw5pzWv_dyjOHCeyTA3K_nqjwi8uBic_-ysXYCuGYQs_wY/s1600/IMG_5269.JPG" imageanchor="1"><img border="0" height="113" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiqVM0-4Ap8LxspqleudvOjuX9EqwL-f22qq0SmTv2i9vIZFKr8oRO_kYhfSoh8pdMK-j_6ehgEVvEI6-Klx5YJLkbl8lDQXaw5pzWv_dyjOHCeyTA3K_nqjwi8uBic_-ysXYCuGYQs_wY/s320/IMG_5269.JPG" width="320" /></a></div>
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It was raining outside and the ship really isn't wheelchair accessible so we sand karaoke from the car as loud as we could, <i>Highway to the Danger Zone</i>!</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZnrLeZL-sYFlDPER1shWukZ1DLVJVT8xX5mDlK4JqVndJbeY2KSX_xOa3_BtNxRTMtzE698h4xDz9JkgtnQA5xravDULS37PrQFPO7xsgDiCyYZ7xulRXZVt83IsbgVEk_JAiQ59Pnfw/s1600/IMG_5342.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0bWYCSDBv-ZuPGYhTEmY6tOUs3gmHLpFph0QAUhmZ0pKQ1kJWrKDPlt9uoMEUZbh3ZEcr78tnR0Y4h9b6FqyIfRHn_t0EuzTX5HCuWE_b-QFz6GaYm0SY7xt2OqPeyDU0B_1v4P98puk/s1600/IMG_5268.jpg" imageanchor="1"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0bWYCSDBv-ZuPGYhTEmY6tOUs3gmHLpFph0QAUhmZ0pKQ1kJWrKDPlt9uoMEUZbh3ZEcr78tnR0Y4h9b6FqyIfRHn_t0EuzTX5HCuWE_b-QFz6GaYm0SY7xt2OqPeyDU0B_1v4P98puk/s320/IMG_5268.jpg" width="240" /></a></div>
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Another trip to a national park and seeing a lighthouse on Sullivan's Island.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZnrLeZL-sYFlDPER1shWukZ1DLVJVT8xX5mDlK4JqVndJbeY2KSX_xOa3_BtNxRTMtzE698h4xDz9JkgtnQA5xravDULS37PrQFPO7xsgDiCyYZ7xulRXZVt83IsbgVEk_JAiQ59Pnfw/s1600/IMG_5342.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMQ1wVWadrGAwaM7nJEMTO2j8MtIgPDSRhfeBcZt8g34tioMZH3LJSbHZFcd0r9cjLCkcc9PF683RyQBbc76JSgRyTSR1wjZn0xlhkVNmecOH8Lkdpt5ozbbRVJnN_T9KIlsKdiNesZ8E/s1600/IMG_5264.jpg" imageanchor="1"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMQ1wVWadrGAwaM7nJEMTO2j8MtIgPDSRhfeBcZt8g34tioMZH3LJSbHZFcd0r9cjLCkcc9PF683RyQBbc76JSgRyTSR1wjZn0xlhkVNmecOH8Lkdpt5ozbbRVJnN_T9KIlsKdiNesZ8E/s320/IMG_5264.jpg" width="240" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZnrLeZL-sYFlDPER1shWukZ1DLVJVT8xX5mDlK4JqVndJbeY2KSX_xOa3_BtNxRTMtzE698h4xDz9JkgtnQA5xravDULS37PrQFPO7xsgDiCyYZ7xulRXZVt83IsbgVEk_JAiQ59Pnfw/s1600/IMG_5342.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiUd-Ln9UCSgaVEjKsI3-NB59uVP5nX-N9Yvztl0QnUPW6PwCYkwasrKtZtWAwW0_bIjWpQ62kGmycv30pnnjjycoMt1vhuZILgYhvhUa9QhwMo_TI83OE_4vwZ6mQCSz2ma1s0Kc25bhs/s1600/IMG_5260.jpg" imageanchor="1"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiUd-Ln9UCSgaVEjKsI3-NB59uVP5nX-N9Yvztl0QnUPW6PwCYkwasrKtZtWAwW0_bIjWpQ62kGmycv30pnnjjycoMt1vhuZILgYhvhUa9QhwMo_TI83OE_4vwZ6mQCSz2ma1s0Kc25bhs/s320/IMG_5260.jpg" width="240" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZnrLeZL-sYFlDPER1shWukZ1DLVJVT8xX5mDlK4JqVndJbeY2KSX_xOa3_BtNxRTMtzE698h4xDz9JkgtnQA5xravDULS37PrQFPO7xsgDiCyYZ7xulRXZVt83IsbgVEk_JAiQ59Pnfw/s1600/IMG_5342.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi-3DUEIZU-nncec6_C5JF2XGJXXa5z7QLWTNQyaEozw9aQu96EXC7OPZzeUdXq5SuOYAJKybiV3HeerOWr-nuJt1hLpM9k32bZscZ1U7QsZvfthrVF7rwV_G0I-jPUEqTXe9Ogc9SJb70/s1600/IMG_5256.JPG" imageanchor="1"><img border="0" height="115" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi-3DUEIZU-nncec6_C5JF2XGJXXa5z7QLWTNQyaEozw9aQu96EXC7OPZzeUdXq5SuOYAJKybiV3HeerOWr-nuJt1hLpM9k32bZscZ1U7QsZvfthrVF7rwV_G0I-jPUEqTXe9Ogc9SJb70/s320/IMG_5256.JPG" width="320" /></a></div>
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We have a lifetime <a href="https://www.nps.gov/planyourvisit/passes.htm" target="_blank">America the Beautiful Pass</a> pass for the disabled and we plan on going to see as many national parks as possible. They are better prices than any amusement park for sure.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZnrLeZL-sYFlDPER1shWukZ1DLVJVT8xX5mDlK4JqVndJbeY2KSX_xOa3_BtNxRTMtzE698h4xDz9JkgtnQA5xravDULS37PrQFPO7xsgDiCyYZ7xulRXZVt83IsbgVEk_JAiQ59Pnfw/s1600/IMG_5342.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDzlaPzslxOP4lYgx62fIi8VL5AX5oPyANdqwYNvl2yPCWee4Zs1FAjAM3cqVsY_5q2OrvqkeUyUm0wKzXZy5ABkVkq6NYF6zHBugkTrCldFRFEmgqBBLXPGgVqNZ9METaazwCsJRDTFo/s1600/IMG_5255.jpg" imageanchor="1"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDzlaPzslxOP4lYgx62fIi8VL5AX5oPyANdqwYNvl2yPCWee4Zs1FAjAM3cqVsY_5q2OrvqkeUyUm0wKzXZy5ABkVkq6NYF6zHBugkTrCldFRFEmgqBBLXPGgVqNZ9METaazwCsJRDTFo/s320/IMG_5255.jpg" width="320" /></a></div>
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The rain and lack of accessibility wouldn't stop us. Scott carried Hayden all the way to the top of the lookout.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZnrLeZL-sYFlDPER1shWukZ1DLVJVT8xX5mDlK4JqVndJbeY2KSX_xOa3_BtNxRTMtzE698h4xDz9JkgtnQA5xravDULS37PrQFPO7xsgDiCyYZ7xulRXZVt83IsbgVEk_JAiQ59Pnfw/s1600/IMG_5342.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjSFuXVWRMuykMPYD-fgnVt-alAyLM-KD5yoD_Pg3CkTEQDUeM3wWR4qTWiair1nf1zrDEe7LLISx9QLaEyMlBM99WewrK1ffZA9zR9np8WJhEIP6Qou0BpMS5SVeWllG3CBpKb39EiHZA/s1600/IMG_5248.jpg" imageanchor="1"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjSFuXVWRMuykMPYD-fgnVt-alAyLM-KD5yoD_Pg3CkTEQDUeM3wWR4qTWiair1nf1zrDEe7LLISx9QLaEyMlBM99WewrK1ffZA9zR9np8WJhEIP6Qou0BpMS5SVeWllG3CBpKb39EiHZA/s320/IMG_5248.jpg" width="240" /></a></div>
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The underground <a href="https://www.nps.gov/fosu/learn/historyculture/fort_moultrie.htm" target="_blank">Fort Moultrie</a>. </div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZnrLeZL-sYFlDPER1shWukZ1DLVJVT8xX5mDlK4JqVndJbeY2KSX_xOa3_BtNxRTMtzE698h4xDz9JkgtnQA5xravDULS37PrQFPO7xsgDiCyYZ7xulRXZVt83IsbgVEk_JAiQ59Pnfw/s1600/IMG_5342.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjqUG-oZWBXe18jVYj9tUZfwJUIuJBXJPLi6zJXHPYy139GBCM7lFXyMUzh7zKqe7bqPe8zyNgK7STpuaHSlkpA6I0CzHIobEky_4uYamUtcfip-tfDKlfIP-1rp4yG8HP4a62Tzqy7IO8/s1600/IMG_5243.jpg" imageanchor="1"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjqUG-oZWBXe18jVYj9tUZfwJUIuJBXJPLi6zJXHPYy139GBCM7lFXyMUzh7zKqe7bqPe8zyNgK7STpuaHSlkpA6I0CzHIobEky_4uYamUtcfip-tfDKlfIP-1rp4yG8HP4a62Tzqy7IO8/s320/IMG_5243.jpg" width="320" /></a></div>
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Not exactly what I expected to see from a national park, but this fort was very kid friendly and I am so glad we went to see where the early pioneers battled (actually <a href="https://www.nps.gov/fosu/learn/historyculture/fort_moultrie.htm" target="_blank">Fort Sumter</a> is where the Civil War began but it is only accessible by boat and it was just too cold)</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZnrLeZL-sYFlDPER1shWukZ1DLVJVT8xX5mDlK4JqVndJbeY2KSX_xOa3_BtNxRTMtzE698h4xDz9JkgtnQA5xravDULS37PrQFPO7xsgDiCyYZ7xulRXZVt83IsbgVEk_JAiQ59Pnfw/s1600/IMG_5342.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvVp0ivn6SSeX5YZWoZmt0CZNogj09AwQjfJoOD8tE4CxTOTq5bRen21eEcW5gBx7UFVtPfVDx7TKoT7jwk9Y3C1TvABT7EWxPCnAPzZYq04H2CYXCDvlrWcbuh4e8jcqrVlQPSaldybg/s1600/IMG_5237.jpg" imageanchor="1"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvVp0ivn6SSeX5YZWoZmt0CZNogj09AwQjfJoOD8tE4CxTOTq5bRen21eEcW5gBx7UFVtPfVDx7TKoT7jwk9Y3C1TvABT7EWxPCnAPzZYq04H2CYXCDvlrWcbuh4e8jcqrVlQPSaldybg/s320/IMG_5237.jpg" width="242" /></a></div>
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Gaga and Hanna made cookies and hot chocolate since it was a cold spring break.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZnrLeZL-sYFlDPER1shWukZ1DLVJVT8xX5mDlK4JqVndJbeY2KSX_xOa3_BtNxRTMtzE698h4xDz9JkgtnQA5xravDULS37PrQFPO7xsgDiCyYZ7xulRXZVt83IsbgVEk_JAiQ59Pnfw/s1600/IMG_5342.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcz0KjJHzk1igAu00K2aCmkQ36q2wm86qsDZwHkXbBjoeqSB0vPQrDBZBN5VdO9R6U4dZswYPPxi4-DJakNv1PJAaOXBYOg57tmkN8OvqW1WdigMV57KRU6gUx4EjgYWTBBX8fWYq_Flc/s1600/IMG_5232.JPG" imageanchor="1"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcz0KjJHzk1igAu00K2aCmkQ36q2wm86qsDZwHkXbBjoeqSB0vPQrDBZBN5VdO9R6U4dZswYPPxi4-DJakNv1PJAaOXBYOg57tmkN8OvqW1WdigMV57KRU6gUx4EjgYWTBBX8fWYq_Flc/s320/IMG_5232.JPG" width="303" /></a></div>
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It was a great Sunday at church with Gaga taking a day of "rest".</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZnrLeZL-sYFlDPER1shWukZ1DLVJVT8xX5mDlK4JqVndJbeY2KSX_xOa3_BtNxRTMtzE698h4xDz9JkgtnQA5xravDULS37PrQFPO7xsgDiCyYZ7xulRXZVt83IsbgVEk_JAiQ59Pnfw/s1600/IMG_5342.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgiB_d0S7E2hzSwcRPvYP23dnjG9Uo6ME8V55LE6C6UYq96PCz9eyZ7LnYv1W0wLNtycXwK38d2FWzul0D_RU1VecI9ZxqQtnnLYgy9Ps6A0pa8t8INn-RCgKecjn4MnyFtJz9rg-UCgss/s1600/IMG_7390.jpg" imageanchor="1"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgiB_d0S7E2hzSwcRPvYP23dnjG9Uo6ME8V55LE6C6UYq96PCz9eyZ7LnYv1W0wLNtycXwK38d2FWzul0D_RU1VecI9ZxqQtnnLYgy9Ps6A0pa8t8INn-RCgKecjn4MnyFtJz9rg-UCgss/s320/IMG_7390.jpg" width="173" /></a></div>
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Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com0tag:blogger.com,1999:blog-5100589266453048503.post-28582755189293593802017-02-24T12:49:00.000-06:002017-02-24T12:49:17.806-06:00CC4C and lots of Lake Travis Love<div class="separator" style="clear: both; text-align: center;">
One of the most unusual things about our family and our life is our opportunity to meet extraordinary people in our community. The love and goodness of the individuals in our community has flooded our family and overwhelmed us.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi6DTwt5SAzIepvsgfiOkbyMtqYoMXztBxT_RvhNnytE4DsCT4aXIhOhGqZmPZsSgZ1HedB1Tx4G5Jiv9EgE_EGAFsRwPmAgD2WCtDdmbxPAWohj6RV2Jft_3SKLLeMm024XK47p7bwMEA/s1600/Love%252C+The+Trigg+Family-2.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="256" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi6DTwt5SAzIepvsgfiOkbyMtqYoMXztBxT_RvhNnytE4DsCT4aXIhOhGqZmPZsSgZ1HedB1Tx4G5Jiv9EgE_EGAFsRwPmAgD2WCtDdmbxPAWohj6RV2Jft_3SKLLeMm024XK47p7bwMEA/s320/Love%252C+The+Trigg+Family-2.jpg" width="320" /></a></div>
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Anytime there is a valentine's party for my little ones, that means I get to be busy making them for those that have a hard time cutting and coloring. Hayden is considered tetraplegic, so thank goodness for the digital age. The one above was the best I could do this year. It had many technical difficulties and for someone who used to do yearbooks for schools for years, this was not the product I was hoping for but settled due to time. Little did I know, that the few hours I put into making the valentines would be reciprocated 10 fold. </div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjWHNwJMjmoJa6B6VSLHn019ebUBMiOZuaE4uof5Zpe7WHR5qtMagCcbcx7jiYjm4ECGrocwlEbuBAa4qndYF7Ts1nojpk9wxrU8uduX-mesSQhsOUWnCv1KuMvIxWzqy1qSw_2pMHVCwA/s1600/IMG_0369.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjWHNwJMjmoJa6B6VSLHn019ebUBMiOZuaE4uof5Zpe7WHR5qtMagCcbcx7jiYjm4ECGrocwlEbuBAa4qndYF7Ts1nojpk9wxrU8uduX-mesSQhsOUWnCv1KuMvIxWzqy1qSw_2pMHVCwA/s320/IMG_0369.JPG" width="320" /></a></div>
<a href="http://www.cc4c.org/" target="_blank">CC4C</a> paid a visit to Hayden and delivered by the <a href="http://www.kindsnacks.com/" target="_blank">Www.kindsnacks.com</a> an amazing amount of goodies to his class with his champion buddy, CB Hudson. The ladies seem to nudge CB out of the way. <br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg27hC-7BKVyOnhGD258PZ2vWbNf3LW2fFeGkugxqxRrnFSg7sJSbbQywTVgdyweTSO-VRMsChqHJkPzzHGwaoAbl2Zi67kdOEJpYbUwI6GY4YVaypt9zzzX541A1lVaTdzjnhx_lukhps/s1600/IMG_0370.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg27hC-7BKVyOnhGD258PZ2vWbNf3LW2fFeGkugxqxRrnFSg7sJSbbQywTVgdyweTSO-VRMsChqHJkPzzHGwaoAbl2Zi67kdOEJpYbUwI6GY4YVaypt9zzzX541A1lVaTdzjnhx_lukhps/s320/IMG_0370.JPG" width="320" /></a></div>
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This kid loves his class, teachers and school. I give complete credit to the educators that make his classroom inclusion. This picture is worth a thousand words on why it works. Education, self esteem, service, community and most of all love.</div>
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Below is the result of reading and going through valentines for 3 hours and hanging them to celebrate all the way through the next few weeks including Hayden's 8th birthday. The kids had a blast but mom did most of the work;). I just couldn't begin to hang the entire basket of little valentines the kids got, so they made it on the stander on the right.</div>
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We had a great valentines day. Hayden upgraded his box this year to be in line with all his life or urology and GI battles but not quite yet appropriate 2nd grade potty humor.<br />
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Be sure to read the french with the french accent.</div>
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Garrett's 1st Valentine box.</div>
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<span style="text-align: start;">Flowers from my sweet Valentine!</span></div>
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My cutest little sunday school Sunbeam, Garret,t and his buddy for life Charlie. Aren't they the cutest!<br />
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Garrett started making these at our family respite vacation camp John Marc near Dallas.<br />
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My pretty Valentine, Hanna.<br />
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The only time she will let me do heart hair.<br />
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Thank you Pi Beta Phi at UT, The Lake Travis Swim Team, the Lake Travis Athletic Department thanks to coach Hank Carter, Lake Travis Pals, Lake Travis Football Team & Lakeway Elementary.<br />
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Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com0tag:blogger.com,1999:blog-5100589266453048503.post-55685982680344450892017-01-24T21:50:00.001-06:002017-01-24T23:06:26.762-06:00Texas Medicaid to Managed Care<span style="font-family: "helvetica"; font-size: 12px;">Please as you read this post try not to associate the label of a political party with the intent of my comments. I'm doing my best to explain what it is that we are living daily. I open up to share my story because so few people understand what is at stake. What is at stake for our family is of the highest level. It is not insurance deductibles, it is not costs of premiums; it is insurance processes being consistent and transparent that keeps us out of the hospital and at home and out of institutions. Our story is not one of a political football to be tossed around for others political gain.</span><br />
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<span style="font-family: "helvetica"; font-size: 12px;">Today, I prayed for all of the many people in attendance at the HHSC Star Kids meeting. There are leaders over state health care who are doing their best working out the many issues associated with the dissolution of the Texas managed Medicaid model to the new privatization model. I prayed that their hearts and minds would be inspired to listen to the issues that would touch their hearts and their humanity.</span><br />
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<span style="font-family: "helvetica"; font-size: 12px;">There were many issues noted as I listened in on the meeting. Ultimately, those issues that are systematic, in an unproven system, have trickled down to many children that are medically fragile and their families are paying the drastic consequences where the intended "continuity of care" has sorely missed the mark. We have been bearing the burden of process failures while painfully earning and trying to hold tight to services, medications, doctors and special equipment for daily living. </span><span style="font-family: "helvetica"; font-size: 12px;">I learned in business about accounting projections, forecasts, risk & feasibility analysis and quality control. HHSC has a committee that advises the state about all of these things, and following our testimony and all of the analysis, the committee suggested a delay of 12 months yet it was not listened to by the law makers that appoint the </span><span style="font-family: "helvetica";"><span style="font-size: 12px;">committee and roll out took place this past October.</span></span><br />
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<span style="font-family: "helvetica"; font-size: 12px;">It has been an overwhelming process transitioning to the new managed care model. I have spent several days crying due to feeling overwhelmed at the snowball of denials. I have been forced to try and learn the role of detective to identify the root of the systematic issues. It has kept me up for many nights. You may have seen me parked and crying in the pharmacies parking lot for not being able to get prescriptions refilled or crying on my phone for an MRI, or waiting for over a year for a wheelchair and mobility aides. Let's just say there has been a lot of crying in parking lots.</span><br />
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<span style="font-family: "helvetica";"><span style="font-size: 12px;">Starting off the new year we had our annual Spina Bifida clinic meeting with over a dozen medical professionals meeting in our room giving an oral quiz for a long 6 hour day. Prior to this day, we are ordered to get routine images done for this complex clinic for review (MRI, renal bladder ultrasound and a whole spine X-ray). The stress of having to get images done on a child that is medically complex is enough to be overwhelmed about. Add to it trying to manage scheduling the appointments all together in one day and making sure that it is approved minutes before the procedure that requires fasting for you child all day. This beat me down but I kept getting back up and made it through. This new battle feels as though our freedom is being stripped away to effectively care for Hayden at home and our time and energy is consumed in processes. It has threatened us to seek treatment in the ER, just the place that the new system is trying to keep us out of. Trust me, we want to stay as far away from the ER as much as possible.</span></span><br />
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<span style="font-family: "helvetica"; font-size: 12px;">New legislation is required this session if we have any hope of fixing the many issues that were brought up today in the meeting by the providers. My work is not done and I am glad I do not have to stand alone. I am fortunate to live in Austin to have the convenience of making the day trip to speak to the politicians. Many families travel from all over the state at their own personal expense of time and sacrifice to attend these meetings. We are families of vulnerable children of all races, socioeconomic backgrounds, and religions. We are a grassroots group of mothers and fathers of fragile children who have to rise up and speak out. #txlege </span><a href="http://www.protecttxfragilekids.org/the-problem-with-star-kids.html" style="font-family: Helvetica; font-size: 12px;">http://www.protecttxfragilekids.org/the-problem-with-star-kids.html</a><br />
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<span style="font-family: "helvetica"; font-size: 12px;">More is coming. We continue to need your help to let the legislators know that this is more of a priority than dollars and cents. Next Tuesday, I will be back at a hearing with Senator Nelson, the author of this mess. If you are interested in knowing when and where you can support fragile Texas kids, let me know and I will be sure to let you know the dates to follow.</span><br />
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<span style="font-family: "helvetica";"><span style="font-size: 12px;">I don't want to be involved in politics. I didn't get a law degree. I didn't want to be a doctor or nurse, I didn't get a degree in medicine. I paid to study subjects of interest such as art, mass communication and business for my career. Yet here I am more studied in medicine than I ever imagined. This education was from a fire hose and the cost has been high. I am only now beginning to learn about politics and how the law is used as a game of strategy and that justice isn't guaranteed but I believe this battle is worth fighting for.</span></span><br />
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<span style="font-family: "helvetica"; font-size: 12px;">Niemöller is perhaps best remembered for the quotation: </span><br />
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<span style="font-family: "helvetica"; font-size: 12px;">First they came for the Socialists, and I did not speak out—</span><br />
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<span style="font-family: "helvetica"; font-size: 12px;">Because I was not a Socialist.</span><br />
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<span style="font-family: "helvetica"; font-size: 12px;">Then they came for the Trade Unionists, and I did not speak out— </span><br />
<span style="font-family: "helvetica"; font-size: 12px;">Because I was not a Trade Unionist.</span><br />
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<span style="font-family: "helvetica"; font-size: 12px;">Then they came for the Jews, and I did not speak out— </span><br />
<span style="font-family: "helvetica"; font-size: 12px;">Because I was not a Jew.</span><br />
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<span style="font-family: "helvetica"; font-size: 12px;">Then they came for me—and there was no one left to speak for me.</span>Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com0tag:blogger.com,1999:blog-5100589266453048503.post-61543693853926870412015-11-26T20:32:00.003-06:002015-11-26T20:32:25.981-06:00Feeding Therapy Week 2<a href="http://haydentrigg.blogspot.com/2015/11/baltimore-feeding-therapy-week-2.html" target="_blank">http://haydentrigg.blogspot.com/2015/11/baltimore-feeding-therapy-week-2.html</a>Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com0tag:blogger.com,1999:blog-5100589266453048503.post-78876021394610290862015-11-20T22:56:00.001-06:002015-11-21T06:15:50.778-06:00Feeding Therapy Week 1<a href="http://haydentrigg.blogspot.com/2015/11/baltimore-feeding-therapy-week-1.html" target="_blank">http://haydentrigg.blogspot.com/2015/11/baltimore-feeding-therapy-week-1.html</a><br />
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Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com0tag:blogger.com,1999:blog-5100589266453048503.post-32828645001307592672015-10-31T17:12:00.002-05:002015-10-31T17:46:12.061-05:00Halloween milestoneAs many of you may know, this last week has been an extremely difficult week for Hayden and our family. While every minute was focused on getting Hayden well in the hospital, he missed out on a lot of fun Halloween events at school and in his community. One of the most important things he didn't want to miss was Halloween. Halloween and Christmas are probably the two most important holidays celebrated by our kids.<br />
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We are grateful to those of you who are always looking out for us. This year we were fortunately referred to two nonprofit charities and to be the lucky beneficiaries of their good works. One is <a href="http://www.walkinrollin.org/">Walkin' & Rollin'</a> Costumes. The other is <a href="http://Flying Vikings">Flying Vikings</a>. Hayden's costume wish was custom designed and built free of charge from a kickstarter nonprofit out of Kansas. This was my first year not to spend weeks designing it on my own. He loves airplanes. He is Dusty Crophopper and Garrett is his best friend El Chupacabra.</div>
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Below are pictures of the big unveiling of the costume. It was designed to be shipped and assembled easily. He couldn't wait. We were glad to have family around to see the big exciting news.</div>
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We told every nurse and every doctor in the hospital how important it was for Hayden to be healed so that he could wear his costume and attend the Flying Vikings event. We are happy and relieved that Hayden healed and for the stay of rain so that we could get up and enjoy the most magical morning with the <a href="http://flyingvikings.org/about/">Flying Vikings</a>.<br />
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I made this one manic day in the hospital room with doctors and nurses in and out. I told them I am not forgetting my other children. I made this out of foam, felt, staples, glue, a bowl and lots of duct tape. I needed it to be light, sturdy and to stay up with suspenders. Unfortunately for a 2 year old, he still thought it was "too heavy."</div>
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I swish my cape at you, you have been shamed.</div>
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<span style="background-color: white; color: #292f33; font-family: 'Helvetica Neue', Helvetica, Arial, sans-serif; letter-spacing: 0.2800000011920929px; text-align: start; white-space: pre-wrap;">Who is the plane who breaks wind – and it STAYS broken? It is I, EL CHUPACABRA</span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgQwuzmSPQvgeWQuGE_onO8sOrcbnSPqOIdKdyZvZiS5M38cou7PP6qyiXUM27nv_ethTyOpZCpvNWdkZx9NdBcd9ikYM73L2KDD6slnPTjZLh-Cp4KxrpefTXlM-M9DzBIp327bjZQ7dQ/s1600/IMG_7342.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="213" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgQwuzmSPQvgeWQuGE_onO8sOrcbnSPqOIdKdyZvZiS5M38cou7PP6qyiXUM27nv_ethTyOpZCpvNWdkZx9NdBcd9ikYM73L2KDD6slnPTjZLh-Cp4KxrpefTXlM-M9DzBIp327bjZQ7dQ/s320/IMG_7342.JPG" width="320" /></a></div>
We took the family photos before we possibly got rained out or we all fell apart.<br />
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One of my favorite quotes from the movie:</div>
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<a href="http://www.imdb.com/name/nm0016141/?ref_=tt_trv_qu" style="color: #70579d; text-decoration: none;"><span class="character" style="font-weight: bold;">El Chupacabra</span></a>: Are you tired? You have been flying through my mind nonstop! </div>
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<a href="http://www.imdb.com/name/nm0000506/?ref_=tt_trv_qu" style="color: #70579d; text-decoration: none;"><span class="character" style="font-weight: bold;">Rochelle</span></a>: And why would I be tired from flying through such a teeny-tiny space, hmm?</div>
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<iframe width="320" height="266" class="YOUTUBE-iframe-video" data-thumbnail-src="https://i.ytimg.com/vi/vTO6-lqGbZU/0.jpg" src="https://www.youtube.com/embed/vTO6-lqGbZU?feature=player_embedded" frameborder="0" allowfullscreen></iframe></div>
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El Chupacabra, Dusty Cropphopper, Princess Sophia & Top Gun (the original/oldie planes movie).<br />
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The car show that zoomed up and greeted us as we were the first to arrive at the event!</div>
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This was Hayden's favorite orange car.<br />
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Crafts to do while we waited for the skies to clear. Thank you God for giving us this morning!<br />
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Our wonderful pilot PT and his plane.<br />
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This was Hayden's favorite UT hookem' orange car with the owner being a philanthropic UT student. This isn't what my college transportation looked like:)</div>
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McLaren 650S Spider.<br />
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Garrett thought this should be his car since it matched him.</div>
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This wasn't a paint job, it was a custom wrap for the kids just for the show.</div>
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Getting ready for his first flight he was very concerned and focused.<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjKmtAbNA6e6zFrYDYgd5Htid2nSnSEJBUOyZSE22eQNIAgsNht-VuYqoC3jnhsYp4DjYGU3VaEQ3I2uQ_kd49Wm26ppvQlPD0kTGKBog26-RzYP8nrXYrhpQsMLuR7OkTA7KLOH43wmVE/s1600/IMG_7345.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="213" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjKmtAbNA6e6zFrYDYgd5Htid2nSnSEJBUOyZSE22eQNIAgsNht-VuYqoC3jnhsYp4DjYGU3VaEQ3I2uQ_kd49Wm26ppvQlPD0kTGKBog26-RzYP8nrXYrhpQsMLuR7OkTA7KLOH43wmVE/s320/IMG_7345.JPG" width="320" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiEeD7wciFSZCAUguXFdsQn-kAsZEgkblLW6wKegsDNT3mGfPyCRMw3RCZrtK3achwya7X1jAKZFboZTeMokxDYZmlmlB3z75zY2kg6_Bes4t2qVcgjft7WeQXe-VAkKd6rEkDdLQBvJNA/s1600/IMG_7348.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="213" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiEeD7wciFSZCAUguXFdsQn-kAsZEgkblLW6wKegsDNT3mGfPyCRMw3RCZrtK3achwya7X1jAKZFboZTeMokxDYZmlmlB3z75zY2kg6_Bes4t2qVcgjft7WeQXe-VAkKd6rEkDdLQBvJNA/s320/IMG_7348.JPG" width="320" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjklX_fOgiHMmxLUYZIrLeZJQfX1K1NeSVeB7LyjTOizedQPIp8WxoaRuy9UUyU8mZ-Dn5gMz3DDLKeGDcOhypzxwvK6W0ConqYxT9mQyjYvv33atV5GVBcUrj-wQsTyj1y1K6RvMHhykk/s1600/IMG_0326.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjklX_fOgiHMmxLUYZIrLeZJQfX1K1NeSVeB7LyjTOizedQPIp8WxoaRuy9UUyU8mZ-Dn5gMz3DDLKeGDcOhypzxwvK6W0ConqYxT9mQyjYvv33atV5GVBcUrj-wQsTyj1y1K6RvMHhykk/s320/IMG_0326.JPG" width="320" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj62Q4OmflnAlLm2epjkOuyE8m2CG0BwM2_v3gFXlQwnWXELxgnKs1r3taaBYEpJHQ7R7AZ24NVLoX9MW50hoYz-zjNGL_ME0XbpBco40K4OPjwwxoVs1juOzp8sWKucLXXUoerNQqWIOQ/s1600/IMG_7360.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="213" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj62Q4OmflnAlLm2epjkOuyE8m2CG0BwM2_v3gFXlQwnWXELxgnKs1r3taaBYEpJHQ7R7AZ24NVLoX9MW50hoYz-zjNGL_ME0XbpBco40K4OPjwwxoVs1juOzp8sWKucLXXUoerNQqWIOQ/s320/IMG_7360.JPG" width="320" /></a></div>
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He actually flew most of the time we were in the air. He held it very steady and loved every minute!</div>
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Going over Georgetown lake.</div>
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He held steady for the landing.</div>
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While he didn't fly this plane he did love it's orange stripes.<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNKkzMU0ulGJEv-niVMiW_T_Uyb2dDCgJQ-LJzrnxPtemZ45u_hlrI1nzBLXGGPGOJb0Ucloa3jrJeFpaBfWg_QtjlOd07gPcRuScGuIn8RtNpwYa7pl3DyhuzDyT8u8APMadBJvlOa3I/s1600/IMG_7410.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="213" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNKkzMU0ulGJEv-niVMiW_T_Uyb2dDCgJQ-LJzrnxPtemZ45u_hlrI1nzBLXGGPGOJb0Ucloa3jrJeFpaBfWg_QtjlOd07gPcRuScGuIn8RtNpwYa7pl3DyhuzDyT8u8APMadBJvlOa3I/s320/IMG_7410.JPG" width="320" /></a></div>
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Hanna was off to her crafting event and had no time for pictures.</div>
She didn't event want to drive in the race cars.<br />
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It isn't everyday that you see a car seat in a Ferrari. The nicest owner, Stuart, gave Hayden an Italian Lira as a prize.<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNfQwTDq8USrVWNYwr4JABm96Akbq5FhH7WZLnGPg2pPCv4dCrEKiAo3cmOMSc0MN_Ad_0j3WHhDVWbT7YCpP_xbfBngx026r35ZQ8Tqy0zv9mcUzYmjye4XE0j1aANT4BSD5F2h06YYQ/s1600/IMG_7421.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="213" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNfQwTDq8USrVWNYwr4JABm96Akbq5FhH7WZLnGPg2pPCv4dCrEKiAo3cmOMSc0MN_Ad_0j3WHhDVWbT7YCpP_xbfBngx026r35ZQ8Tqy0zv9mcUzYmjye4XE0j1aANT4BSD5F2h06YYQ/s320/IMG_7421.JPG" width="320" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhRQo43qjjsTuO__17sker1EVU9EmqzW1TjgGfBbXDvJ6RueWVk8wkEh3qlRiDFVPh0ZS4fctkRRT38AAT_6fDzHXLvHCRxYoTIimdQgETQ20dlNmW0iAh5j11iEpnvHob3AT85_lG3Q8E/s1600/IMG_7435.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="213" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhRQo43qjjsTuO__17sker1EVU9EmqzW1TjgGfBbXDvJ6RueWVk8wkEh3qlRiDFVPh0ZS4fctkRRT38AAT_6fDzHXLvHCRxYoTIimdQgETQ20dlNmW0iAh5j11iEpnvHob3AT85_lG3Q8E/s320/IMG_7435.JPG" width="320" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgMctd4767kpnMZKG0WrOkKuX81q68-3at_A-JLnkPSMW30JtLBBiwcy54gAwlnfsaxBXke8qOH1Myw56C8C_S6Efhfht8djj3Zs9QN1fGahMl5weVxcMMRFL2dbRJXoE-Q63mLK8qsRI0/s1600/IMG_7438.JPG" imageanchor="1" style="margin-left: 1em; 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Yes Scott spotted Ikea:)</div>
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Whew, naps this afternoon and then off to trick or treating!</div>
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Today we made happy memories. Thank you to oh so many who made today possible.</div>
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While Hayden has not yet learned how to walk, today he learned how to fly.</div>
<script src="safari-extension://com.ebay.safari.myebaymanager-QYHMMGCMJR/5f257fe6/background/helpers/prefilterHelper.js" type="text/javascript"></script><a href="http://www.pinterest.com/pin/create/extension/?url=https%3A%2F%2Fwww.blogger.com%2Fblogger.g%3FblogID%3D5100589266453048503%23editor%2Ftarget%3Dpost%3BpostID%3D3282864500130759267%3BonPublishedMenu%3Dallposts%3BonClosedMenu%3Dallposts%3BpostNum%3D0%3Bsrc%3Dlink&media=https%3A%2F%2F1.bp.blogspot.com%2F-NB9Qwf4lWnw%2FVjU0s7KfvOI%2FAAAAAAAAE88%2FFCmTwyYnSgg%2Fs320%2FIMG_7474.JPG&xm=h&xv=sa1.37.01&xuid=pvLJD9f6Koef&description=" style="background-color: transparent; background-image: url(data:image/png; border: none; cursor: pointer; display: none; height: 20px; left: 201px; opacity: 0.85; position: absolute; top: 11405px; width: 40px; z-index: 8675309;"></a><a href="http://www.pinterest.com/pin/create/extension/?url=https%3A%2F%2Fwww.blogger.com%2Fblogger.g%3FblogID%3D5100589266453048503%23editor%2Ftarget%3Dpost%3BpostID%3D3282864500130759267%3BonPublishedMenu%3Dallposts%3BonClosedMenu%3Dallposts%3BpostNum%3D0%3Bsrc%3Dlink&media=https%3A%2F%2F1.bp.blogspot.com%2F-NB9Qwf4lWnw%2FVjU0s7KfvOI%2FAAAAAAAAE88%2FFCmTwyYnSgg%2Fs320%2FIMG_7474.JPG&xm=h&xv=sa1.37.01&xuid=pvLJD9f6Koef&description=" style="background-color: transparent; background-image: url(data:image/png; border: none; cursor: pointer; display: none; height: 20px; left: 201px; opacity: 0.85; position: absolute; top: 11405px; width: 40px; z-index: 8675309;"></a>Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com0tag:blogger.com,1999:blog-5100589266453048503.post-51055797312928717572015-09-05T22:57:00.003-05:002015-09-05T23:04:36.061-05:00Raising a Texas Cheerleader & Friday Night Lights<div class="separator" style="clear: both; text-align: center;">
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Hanna has a new squad and all new friends. She is also the oldest by a year and a head taller. She just couldn't take the picture without her poms.<br />
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This is her third year as a cheerleader and she absolutely is loving it.<br />
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LTYA cheer is the smallest that it has been in the past three years. <br />
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My tall big girl. I can't believe she is getting so big.<br />
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This is the first game of the year where the little kids get to run out with the Friday night Varsity team. Friday night lights in Texas is a very big deal.<br />
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Hanna is running out in the center of this picture with her poms held high. <br />
Our back yard backs to the high school, so we can hear everything without seeing anything. Kind of crazy to hear all the sounds coming out of the woods.<br />
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One of our favorite cheerleaders, Cecily, helping Hayden see past all the people that park their fannies in his face. The fire code enforcer kept getting mad at us for wheeling him up. The handicapped seats are terrible that they are right in line with all the people walking in front of you. Only if they wouldn't let all the people block him from his view. This year was at least better that they didn't have the trash dumpsters parked in the handicapped spots. Not worth the hassle but it was worth seeing his sister run out onto the field.<br />
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We will take a break from Friday night lights for at least 12 years until this little guy Garrett who loves football starts playing here.<br />
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She LOVES the spotlight.<br />
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She will not sacrifice form even if she does take out the innocent girl next to her.<br />
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Does your high school have a jumbo-tron? Hmmm maybe the district will eventually find $ for the playgrounds too:).<br />
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I love the face of the sweet girl next to Hanna with the face of terror as they run out of the helmet. Hayden's classmate on the left of the picture is so priceless.<br />
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<script src="safari-extension://com.ebay.safari.myebaymanager-QYHMMGCMJR/f44bbb53/background/helpers/prefilterHelper.js" type="text/javascript"></script>Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com0tag:blogger.com,1999:blog-5100589266453048503.post-83181769439144465282015-08-31T12:07:00.001-05:002015-08-31T12:07:00.144-05:00Hayden's Journey: Back to School Education about Spina Bifida Awaren...<a href="http://haydentrigg.blogspot.com/2015/08/back-to-school-education-about-spina.html?spref=bl">Hayden's Journey: Back to School Education about Spina Bifida Awaren...</a>: Our Vision for HAYDEN Our vision is simple. We want Hayden to be given the same opportunities as any other student in the school. We ...<br /><br />
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<script src="safari-extension://com.ebay.safari.myebaymanager-QYHMMGCMJR/3d80a334/background/helpers/prefilterHelper.js" type="text/javascript"></script>Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com0tag:blogger.com,1999:blog-5100589266453048503.post-31734166818481103362015-08-25T08:11:00.003-05:002015-08-25T08:13:22.291-05:00Fist Day of School 2015The first day of School 2015. I just realized that I still like the blog for a way to chronicle the year. I missed all of the 2015 school year with the blog. We have had a grand start. The kids were almost as excited as their parents for them to go to school. <br />
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It was a big day for everyone including their mom. I had a tire blowout on the highway and changed the tire in 100 degree temperature on the side of the road on my way to pick up my sister Julia from the airport. <br />
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Hanna loves her new teacher and is in class with her best friend at school. She has a great group of kids in her class this year and it is looking very hopeful. On the way home from her first day, Hanna put on the wrong bus. I am proud of her for knowing her address and telling the bus driver that she was on the wrong bus. They didn't listen to her, but she knew her address and spoke up. We still had to retrieve her from the school after tracking her down. <br />
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Hayden is also in class with his best friend at school. The class is small and has many of the students in it from his fabulous Kinder class. The big news was that there were no school issues with him bringing his nurse and everything was seamless. <br />
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This year there will be a battle to get him access to the playground like the rest of the kids. the ADA law was passed in 2011 and the school district hasn't made any plans to upgrade the playground. They even built the new elementary and didn't build it up to the new code. Our district has a $158.9 million bond and is the third wealthiest in the state. They can't say they don't have the taxpayers/funds to do it.<br />
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This is his 3rd year of not being able to play with the other children independently. For the past few years, I have met with teachers and presented at the school board to no avail. I meet with the district rep on Wednesday. I have filed with the Office of Civil Rights and have made friends with a parent in another district that sued in a class action suit and won for the whole district. I hope that through persistence & tenacity, the community that we adore will see the injustice through their own compassion and will do right by the law and this cute little boy and the many other children that are left out of the same experiences for social/emotional development won't be any longer. The ADA is only 20 years old this year. There is still much to do...<br />
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I am happy to report, we all made it home safe and are ready for the school year to start!<br />
We love our school!<br />
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Garrett was feeling a little left out and missed his big brother and sister the most. He starts his first Pre-school this year and I am sure will love the two days to play with his little friends.<br />
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<script src="safari-extension://com.ebay.safari.myebaymanager-QYHMMGCMJR/3d80a334/background/helpers/prefilterHelper.js" type="text/javascript"></script>Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com1tag:blogger.com,1999:blog-5100589266453048503.post-68880314495508564552014-08-31T19:26:00.002-05:002014-08-31T21:59:57.090-05:00Mexico Stem Cells and Disney pictures<div class="separator" style="clear: both; text-align: center;">
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We absolutely loved our trip to Mexico. Hindsight has shown us just how good people in the world can be.<br />
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Casa Bedlamitos was a refuge in the storm of the stem cell journey.<br />
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We can't believe the generosity and love that was shown to us to let us stay in this beautiful home.<br />
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Smelling the flowers that were all along our path to the beach.<br />
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Strong man carrying both boys down the cliff to the beach.<br />
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Rescuing a pelican that had gotten tangled in a fishing hook and line.<br />
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Finding balance in the tide.<br />
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Hanna was in love with the ocean!<br />
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The greatest association of amazing people I never knew I would be honored to be associated with.</div>
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Hayden having a blast at the music therapy during kids camp.</div>
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Garrett loving the Disney resort pool.<br />
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Hanna's babies loving her own bed and wonderful resort backboard.<br />
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Sidewalk chalk art with friends at camp.<br />
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A great group of kids at Spina Bifida Camp from all over the country 5 & under<br />
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Buddies that we met when Hayden was just 2 at the first conference at Disney</div>
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The joy of making a new Fire Engine Mater<br />
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Hanna making her best duck face at the Rain Forest Cafe<br />
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Not the most exciting sign to see when you are at a national conference for the birth defect Spina Bifida.<br />
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On of Princess's favorite rides<br />
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Our first trip to California adventure and better than we could have imagined! Thanks Christi!!<br />
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Mater says, "tractors are so dumb"</div>
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Can't believe he talks and drives by himself!<br />
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This was just simply too much! He LOVES Mater!<br />
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Oh happy day!<br />
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Garrett didn't have the fine appreciation of the rides that the other two had.<br />
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Great parking for the parade<br />
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Thanks for the bubbles Woody & Toy Story!<br />
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All day at California adventure and all night at Disneyland. <br />
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Can you guess who she is today?<br />
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My favorite ride is Whinny the Poo.<br />
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The best, easy going baby around!<br />
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Different day, different princess? No that was a wardrobe change. We were very lucky that we stood in line for the restocking of the Elsa dress that had been sold out all week.<br />
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Yes the real Elsa waived at Hanna and it was a moment she won't soon forget!<br />
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Sorry Ariel, you are now second favorite.<br />
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Hayden got out his sword and look who came and shook his hand.<br />
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This about sums it up. People kept stopping Hanna to tell her how pretty she was. All the while, Hayden was talking to the train conductor and getting special stickers tossed down to him. <br />
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Disney treated us wonderfully. It was the most joyous blessed time. Every night we were exhausted from being so happy.<br />
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<br />Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com0tag:blogger.com,1999:blog-5100589266453048503.post-88090312367925156162014-07-04T13:41:00.001-05:002014-07-04T17:49:45.083-05:00Disneyland California Spina Bifida Conference AdventureComing from Mexico following the stem cell surgery and witnessing mass poverty in Tijuana, then traveling north to the land of opportunity, excess and indulgence at Disneyland was quite the transition. You can read about the stem cell journey at <b>www.haydentrigg.blogspot.com</b><div><br></div><div>The first time attending the national spina bifida conference in 2011 felt like a culture shock. It was a culture shock to see so many other families that look like our family. I found myself staring at them the way the people stare at us. This time around, it felt like coming home.</div><div><br></div><div>The conference was a three-day event. Opening-night was great to see many of our long-time Facebook friends and fellow spina bifida families. This is the first year Hayden had the opportunity to attend spina bifida camp with other children his own age. He attended all three days of camp. He continued to feel energetic and do remarkably well following his stem cell surgery.</div><div><br></div><div>Scott and I each took a day at conference while the other took care of the children. It was a great opportunity for each of us to go and learn and report back at the end of the day. We both got to learn from the testimonies of many successful individuals that are attorneys, doctors, and athletes that also happen to have spina bifida. They bravely shared what it was like growing up with their various difficult challenges and how it refined them to achieve success. They were bold, brave, determined and humble in the face of daily extreme adversity. </div><div><br></div><div>I also got to do around table discussion with families from all over the country sharing the latest and greatest information of what medically works for them and their families in various parts of the country. Our doctors are going to get a long list of new information from us when we get back home to Austin.</div><div><br></div><div>Scott also got to learn from various specialists. He got to learn from orthodics, orthopedists, neurosurgeons, and urologists from Philadelphia to Seattle to California. Unfortunately, the big missing component of the conference was what research is currently being done for the benefit of those living with spina bifida? Spina bifida is the most devastating and permanently disabling birth defect compatible with life affecting one in 1000 people from occulta to the most extreme cases like Hayden with myelomeningocele.</div><div><br></div><div>While we are hopeful with stem cells, something else has to be done for research with the daily issues that effect those with spina bifida. You might think that the biggest challenges are mobility, but the daily battles largely lie with incontenence and issues associated with urology, neurology, scoliosis and gastrointestinal issues that are not only physical issues, but social issues.</div><div><br></div><div>The best part of the conference was getting to meet with other families and talk about the successes and challenges they've had in the medical community and get to collaborate all of our information. They just get it. We can have a conversation without having to do any back stories on how we got to where we are. They understand the daily therapies and life of special needs. I especially love our super subculture and friendships with those of our same Christian faith and understanding the special joys, blessings and opportunities of having a family member with special needs.</div><div><br></div><div>With the reorganization of the association, conference will only be held every other year. The next location has yet to be determined.</div><div><br></div><div>One of our special opportunities following the conference was spending two days enjoying every minute with the children at Disneyland. One of the greatest pleasures of this trip was getting to see the joy and excitement in our children's eyes as they saw the real life Cars' Radiator Springs & all the Princesses. Disney treated us fantastic even with the changes in policy for those in wheelchairs. Hopefully it will be a little harder for people to abuse the system and keep it a wonderfully accessible vacation destination.</div><div><br></div><div>The parades were awesome as well as the fireworks as we conclude our Fourth of July experience. </div><div><br></div><div>Following this journey, it is hard not to go on seeming too religious. It has been a prayerful experience that we can not deny. Our prayers have been answered in God's timing. We continue to pray to have insight and patience along our continued journey.<div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEizodTtSHubzGnL_Za83nl5CqApB9mMqQdkQ4jpT-2cGuGj7QtSEeKE_I1y65mQ9j_7V02F0-iNzHxm4ycI1FWj3mfKdJ6wsmpSbCEecfsidx-08789ffZT6Rw4lAR7oGR47bnNyo0hwEU/s640/blogger-image--1600393374.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEizodTtSHubzGnL_Za83nl5CqApB9mMqQdkQ4jpT-2cGuGj7QtSEeKE_I1y65mQ9j_7V02F0-iNzHxm4ycI1FWj3mfKdJ6wsmpSbCEecfsidx-08789ffZT6Rw4lAR7oGR47bnNyo0hwEU/s640/blogger-image--1600393374.jpg"></a></div><div class="separator" style="clear: both;">Meeting up with many fantastic moms that I admire and glean from daily.<br><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEizodTtSHubzGnL_Za83nl5CqApB9mMqQdkQ4jpT-2cGuGj7QtSEeKE_I1y65mQ9j_7V02F0-iNzHxm4ycI1FWj3mfKdJ6wsmpSbCEecfsidx-08789ffZT6Rw4lAR7oGR47bnNyo0hwEU/s640/blogger-image--1600393374.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj4GjZnooZkYnTK2ONPcM9CAbKEVr5AJTcTgvHLyKqYojv-ip9INLYzmqsE9MI7SGQV5tmDKavzfPYxJSpkFpY3UdqdGp7NTwJBFxEVG51wMec35K1WyIzHs8Qi7fFImPGmpMCHEIPjW2A/s640/blogger-image-1139758485.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj4GjZnooZkYnTK2ONPcM9CAbKEVr5AJTcTgvHLyKqYojv-ip9INLYzmqsE9MI7SGQV5tmDKavzfPYxJSpkFpY3UdqdGp7NTwJBFxEVG51wMec35K1WyIzHs8Qi7fFImPGmpMCHEIPjW2A/s640/blogger-image-1139758485.jpg"></a></div><div class="separator" style="clear: both;">The highlight of Hayden's vacation. He even gave him a kiss and Mater said, " wow, hot dog!"<br><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPTaQlSgYA2Q-dwIFv6OApq_wo4a1k4oD9MQq6HGxzH9iJpnOGfxcV4aVdooz6dzB9Xkd9Cu56QW3yltKoESCRjKhcMrB_KcIsnkskrWOx7KoXPaJL8Bj_Y6g0LDvr2TKMNw0AjkdjfM4/s640/blogger-image-820498038.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPTaQlSgYA2Q-dwIFv6OApq_wo4a1k4oD9MQq6HGxzH9iJpnOGfxcV4aVdooz6dzB9Xkd9Cu56QW3yltKoESCRjKhcMrB_KcIsnkskrWOx7KoXPaJL8Bj_Y6g0LDvr2TKMNw0AjkdjfM4/s640/blogger-image-820498038.jpg"></a></div><div class="separator" style="clear: both;">Radiator Springs with our star guided tour by Cinderella...this day. We were guided by a different princess each day.</div><br><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhbyeZRvNNgGJeaaiG3zUKmy4mlyePpsaQvQnDgjgXdojjtddslwKxazFNIUm00SfhFdHX0673Z2ftF7hF7PpvRZsB3Ov1sRwoO2jjIkSgIpLUwKW9qSOh_Rw6KBoehIzaA7kRbwvHPwE4/s640/blogger-image--2005662820.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhc4ulce6WChJO6S9h1DcgmvdWp7fiTSBMdQTZT6ohqIJT_2W1T5HH6YGsOxn2juBYV0Jv1Raf8efwHsDRq5rE1gH-yIfwp4vJ-5yhnTmyn7O-yZUbIItRAdgDxKzkzsCgGXWEErgzEHNM/s640/blogger-image--502837027.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhc4ulce6WChJO6S9h1DcgmvdWp7fiTSBMdQTZT6ohqIJT_2W1T5HH6YGsOxn2juBYV0Jv1Raf8efwHsDRq5rE1gH-yIfwp4vJ-5yhnTmyn7O-yZUbIItRAdgDxKzkzsCgGXWEErgzEHNM/s640/blogger-image--502837027.jpg"></a></div><div class="separator" style="clear: both;">He can't even stand it. I though he was so star struck he could faint right there on site. Good thing there was ice cream to revive him there at the Cozy Cone.</div></div><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj4GjZnooZkYnTK2ONPcM9CAbKEVr5AJTcTgvHLyKqYojv-ip9INLYzmqsE9MI7SGQV5tmDKavzfPYxJSpkFpY3UdqdGp7NTwJBFxEVG51wMec35K1WyIzHs8Qi7fFImPGmpMCHEIPjW2A/s640/blogger-image-1139758485.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgp3_cF31j8onlC8tIXb5788fc2taamTVI3t0RLVwhREB9XbPuCc0G7ieU8U7VbWX6aAH_VTn4IYmFHeXOXERDwvZFkoUAiLTcrvmaSuecdlZSR26U3hzOQjP5BMGpail5K67HYKct-zXI/s640/blogger-image-288135166.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgp3_cF31j8onlC8tIXb5788fc2taamTVI3t0RLVwhREB9XbPuCc0G7ieU8U7VbWX6aAH_VTn4IYmFHeXOXERDwvZFkoUAiLTcrvmaSuecdlZSR26U3hzOQjP5BMGpail5K67HYKct-zXI/s640/blogger-image-288135166.jpg"></a></div><div class="separator" style="clear: both;">Trigg family with the one and only T-I-double-ggER.<br><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgp3_cF31j8onlC8tIXb5788fc2taamTVI3t0RLVwhREB9XbPuCc0G7ieU8U7VbWX6aAH_VTn4IYmFHeXOXERDwvZFkoUAiLTcrvmaSuecdlZSR26U3hzOQjP5BMGpail5K67HYKct-zXI/s640/blogger-image-288135166.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTLTlR69IBRLOmkpCGBbW3pS3gMyiSGxHPfB9Ca3rET1Y-LjF85qy1yrgVgcGDfblqQFNPGUI1tnDIslgNuU_4rGY_Xhi6PHLt7mcdoUXQm8KSofc9YjURLA1Kqp05ilT53Z34-_R491w/s640/blogger-image-873292811.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTLTlR69IBRLOmkpCGBbW3pS3gMyiSGxHPfB9Ca3rET1Y-LjF85qy1yrgVgcGDfblqQFNPGUI1tnDIslgNuU_4rGY_Xhi6PHLt7mcdoUXQm8KSofc9YjURLA1Kqp05ilT53Z34-_R491w/s640/blogger-image-873292811.jpg"></a></div><div class="separator" style="clear: both;">After standing in line to buy the dress at Bippity Boppidy Boo, she was the most happy that they had re-stalked after days of being sold out of the Elsa dresses.<br><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTLTlR69IBRLOmkpCGBbW3pS3gMyiSGxHPfB9Ca3rET1Y-LjF85qy1yrgVgcGDfblqQFNPGUI1tnDIslgNuU_4rGY_Xhi6PHLt7mcdoUXQm8KSofc9YjURLA1Kqp05ilT53Z34-_R491w/s640/blogger-image-873292811.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhbNSnuOCLYYMJ037D-jpW9jzWhm0cc9L19h8KqRZ67P9swaq0z98l-PYhIcf3ohZsiLLNHrsLVKot-Mo1ZJnmEgGXNOvPZFDgqg0G8YDhHXHrZTr2u2C8FhoPMzTv8QfoKP5C9tBPJv5c/s640/blogger-image-749953742.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhbNSnuOCLYYMJ037D-jpW9jzWhm0cc9L19h8KqRZ67P9swaq0z98l-PYhIcf3ohZsiLLNHrsLVKot-Mo1ZJnmEgGXNOvPZFDgqg0G8YDhHXHrZTr2u2C8FhoPMzTv8QfoKP5C9tBPJv5c/s640/blogger-image-749953742.jpg"></a><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhbNSnuOCLYYMJ037D-jpW9jzWhm0cc9L19h8KqRZ67P9swaq0z98l-PYhIcf3ohZsiLLNHrsLVKot-Mo1ZJnmEgGXNOvPZFDgqg0G8YDhHXHrZTr2u2C8FhoPMzTv8QfoKP5C9tBPJv5c/s640/blogger-image-749953742.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjm5lzBH7GoVg9pytcOE1z5uQGsKIMIo17Mr1cKnS3s5cyZKE_CX5iXJEYmUh6t7PxMXWFRqtaVW5fnNslUJlTyzkW2m_1J6AbMqSqX71lAmkql4P39UjLre2WDq6a0Nd5MAeMNCqq7-Po/s640/blogger-image--618237890.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjm5lzBH7GoVg9pytcOE1z5uQGsKIMIo17Mr1cKnS3s5cyZKE_CX5iXJEYmUh6t7PxMXWFRqtaVW5fnNslUJlTyzkW2m_1J6AbMqSqX71lAmkql4P39UjLre2WDq6a0Nd5MAeMNCqq7-Po/s640/blogger-image--618237890.jpg"></a></div><div class="separator" style="clear: both;">Squashbuckling Pirate brothers.</div><div class="separator" style="clear: both;"><br><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiBmut7E7gPquzIcQe90W0hApXLr7BNUzsnrnfX9jxnaN7vjYrEe5BqPMPHHFLtC-yj-hLZdaLgVTtn28RJnISKf2oIFZUMhGf0tzZlpsHA_7fiEJRcg5Oo0-oAPpqfbI2NotqDSYweRB4/s640/blogger-image--785848818.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiXNssYMIho-LhvwyszhmnrERD30CoUncVkE-X5otMwd4_IyD5dPGES2XdlrJmwlm_Juk6GNNE31tsU35lYhTueCWY7Kkhd3khoom2PeE92PY79HkuDHzRPCd02T8wINEFVUJpT6xLeBD0/s640/blogger-image-1090853962.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiXNssYMIho-LhvwyszhmnrERD30CoUncVkE-X5otMwd4_IyD5dPGES2XdlrJmwlm_Juk6GNNE31tsU35lYhTueCWY7Kkhd3khoom2PeE92PY79HkuDHzRPCd02T8wINEFVUJpT6xLeBD0/s640/blogger-image-1090853962.jpg"></a></div></div><div class="separator" style="clear: both;">Full on character accompanied by spontaneous song and acting.<br><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi50OgjjbVzIM23fCGvdxFJtn7xxePTPAV8sVyygj7R5YC_B28oPk3kO1cICbXvSc5V9sQYiTUm05ncLWCYKebFfIoJiZQP_y82vIyLuTz1rV2S6zbn6GGV0tOCaIwu3Of5RP4NrKQWTbw/s640/blogger-image--1806677776.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9bOZ3V-nSVfka0Ram1q7P78XvZaXwGVs4Tu8Ge8daiPaWE4VNeGH4LyfalZabeXRIuRkNsEQfVdyQ_Ghr0cA1RqGvPQuWbpOd4Gfat6i909pyCjACq_InJ-c21zqREiJJ9VxGpbwDbZw/s640/blogger-image--894763384.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9bOZ3V-nSVfka0Ram1q7P78XvZaXwGVs4Tu8Ge8daiPaWE4VNeGH4LyfalZabeXRIuRkNsEQfVdyQ_Ghr0cA1RqGvPQuWbpOd4Gfat6i909pyCjACq_InJ-c21zqREiJJ9VxGpbwDbZw/s640/blogger-image--894763384.jpg"></a></div></div></div></div></div></div></div></div><div><br></div><div>It is with deep gratitude to the nameless many who have helped make this trip possible. We are forever grateful for these memories to you our many friends and family who have sacrificed to help us make this brave and joyful journey.</div><div><br></div><div>These are but a few of our iPhone pics and we will share with you our better ones once we get our home unpacked and internet.</div><div><br></div><div>As they say in Disney, ta-ta for now.</div><br><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEijzHlOmXUpenDf1muBZxnzhV-XGz95jqI2sMtolRd4xzsIuNlp3XTpD-ByEDlCGmfGTUGT8MMLWEKjNBBX1UWpPicFepaAkJOQdU80YDY3vpXF9-3M1j4hR_zcmyUTyo25AA7m_KMMa58/s640/blogger-image--42534232.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEijzHlOmXUpenDf1muBZxnzhV-XGz95jqI2sMtolRd4xzsIuNlp3XTpD-ByEDlCGmfGTUGT8MMLWEKjNBBX1UWpPicFepaAkJOQdU80YDY3vpXF9-3M1j4hR_zcmyUTyo25AA7m_KMMa58/s640/blogger-image--42534232.jpg"></a></div>Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com0tag:blogger.com,1999:blog-5100589266453048503.post-23466228428505114292014-06-18T21:23:00.003-05:002014-06-18T21:23:44.362-05:00Follow us on our Stem Cell Journey starting on the 23rd....<a href="http://www.haydentrigg.blogspot.com/">Hayden's Journey at www.haydentrigg.blogspot.com</a>Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com0tag:blogger.com,1999:blog-5100589266453048503.post-10781897595576935862014-03-03T20:50:00.002-06:002014-03-03T22:23:50.421-06:00Birthday Boys<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_8ILhVdoT3B0Aif5XUnmWmqcL6gR3TOVAUg4tbsK2Kj6G5sVW2GuvHgILamTgQLqhjMIdLRP1NfJ8te0RGRMD_LfKFwC4lKFc7oHMs6CwAO4E2Zz5Fdc6aHmvWdxPui3Mzat1tSnU0x8/s1600/IMG_3845.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_8ILhVdoT3B0Aif5XUnmWmqcL6gR3TOVAUg4tbsK2Kj6G5sVW2GuvHgILamTgQLqhjMIdLRP1NfJ8te0RGRMD_LfKFwC4lKFc7oHMs6CwAO4E2Zz5Fdc6aHmvWdxPui3Mzat1tSnU0x8/s1600/IMG_3845.JPG" height="201" width="320" /><span class="Apple-style-span" style="-webkit-text-decorations-in-effect: none; color: black;"></span></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhSmYwEKOLpSfVZ9FSDphlVZPXQUX2UaJ1BMGT4seZuuZkZVxtfM125LHu3zcExflyRGg27-Ch8YnVZ3BzzGMAs0qrYaY3_pAx00d8MyUmPRv4CV1yyFxOoiLiCaIqiyUiXlsNoXadiv7A/s1600/IMG_1830.JPG" imageanchor="1" style="clear: right; display: inline !important; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhSmYwEKOLpSfVZ9FSDphlVZPXQUX2UaJ1BMGT4seZuuZkZVxtfM125LHu3zcExflyRGg27-Ch8YnVZ3BzzGMAs0qrYaY3_pAx00d8MyUmPRv4CV1yyFxOoiLiCaIqiyUiXlsNoXadiv7A/s1600/IMG_1830.JPG" height="200" width="195" /></a></div>
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Garrett turned ONE in January</div>
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Hayden turned FIVE in February</div>
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For Garrett's 1st birthday, we had a lot of family fun and did a lot of family firsts. We went to the new Austin Aquarium and we went bowling for our first time.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgFB9xaM9-478VNsWYIxrmU_193796nyV77jTElyJA03Cp1Yyc_3EsGabUOTDEEXl6oVkKuuCAdXCm-bFhwWqUhsgo0N9rgOPz5FDXuYWh4hSKloLwYwjIe4LIdEXQYYM7Fx_omtHci6X0/s1600/IMG_1751.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgFB9xaM9-478VNsWYIxrmU_193796nyV77jTElyJA03Cp1Yyc_3EsGabUOTDEEXl6oVkKuuCAdXCm-bFhwWqUhsgo0N9rgOPz5FDXuYWh4hSKloLwYwjIe4LIdEXQYYM7Fx_omtHci6X0/s1600/IMG_1751.JPG" height="116" width="320" /></a></div>
The Aquarium is new and we all got to go thanks to Kiki & Bear Paw's Christmas gift family pass!<br />
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Argh, Garrett did not like his birthday glasses.<br />
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Garrett loved that many of the displays were just his height.<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEimuT7qaOJ2yykwN-kdHUYZRrEowwUJj7bTkqcMbEN5zimaJO7Dg4F1KcuJKk_xErYrQ7IMqJCEyioEi_mPzDsK5zkRyAc_YHH370cGP4WfK_Gy6o-vq4IoZSq0p_yXPMwxi8vOSYFZcWQ/s1600/IMG_1815.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEimuT7qaOJ2yykwN-kdHUYZRrEowwUJj7bTkqcMbEN5zimaJO7Dg4F1KcuJKk_xErYrQ7IMqJCEyioEi_mPzDsK5zkRyAc_YHH370cGP4WfK_Gy6o-vq4IoZSq0p_yXPMwxi8vOSYFZcWQ/s1600/IMG_1815.jpg" height="320" width="213" /></a></div>
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Hayden worked hard on standing to touch the sting rays. Hanna would have gotten in and swam with them if we let her.</div>
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After the Aquarium, we swiftly went bowling with Seton Adaptive Sports. On Saturday we had the pleasure of meeting, Larry Turner, who worked many years organizing fun sporting events for families like us who wouldn't have the opportunity to gather collectively otherwise (basketball, sled hockey, bowling, tennis & many more we have yet to explore).<br />
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The very next day, we learned that tragic news that Larry suddenly passed away while playing wheelchair basketball.</div>
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<a href="http://www.harrellfuneralhomes.com/services.asp?page=odetail&id=28534&locid=0">Larry's legacy obituary</a> </div>
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It is with gratitude that we had the pleasure of meeting him. His legacy through his good works will continue on for years to come.</div>
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All of the kids had a wonderful time bowling. This is something we must do again! Thank you for the introduction Larry!</div>
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Hanna & Hayden loved the ramp!<br />
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Hayden with his bestie Josiah.<br />
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Garrett may have been a little to young for this one.<br />
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Best of buddies, Josiah and Hayden. Bowling buddies for life!</div>
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To end the whirlwind of a birthday, we finished off with birthday cake.</div>
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Garrett decided he loves chocolate cake as much as his big brother. He even wanted to share some with his big sister & big brother.<br />
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Hayden had an extra special birthday this year. Since he was hospitalized several times this year, we were told about a great non-profit that makes cakes for especially ill children. They take the stress away knowing that if you end up celebrating your birthday in the hospital (with a child with multiple diagnosis and repeat illness you don't know when this may be), you will still have a fancy cake and a celebration.</div>
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At the time that we contacted them, we weren't sure what the medical situation would be. Actually, the day that they contacted us to asked for details about the cake, we were on our way once again to the ER.</div>
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Hayden was honored to receive a Thomas the Train cake of his little chocolate dreams! He was so excited he talked about it for days! A fantastic baker, Laurel Taylor, of Georgetown, Texas through Icing Smiles, baked this deliciously moist, buttercream, chocolate train perfection!</div>
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What makes this especially special, is that for the months that Hayden vomited daily, he developed an aversion to eating food. Everything made him gag. It is a real break-though that after having g-tube surgery just 6 months ago, he was excited to eat his birthday cake.</div>
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Special transportation was made to deliver it safely to the new Austin Children's museum, the Thinkery.</div>
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The hardest part about the party was keeping our number small to just 10 children as that is all they allowed. Hayden has so many special buddies, kids and many adults, that helped him through his ferocious year of being four.</div>
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We tried to find food that the pickiest, possible-allergy, eating kids would like. Pirate Booty, pre-packaged apple slices, cheese, turkey & cracker trays and water.</div>
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The museum theme was all things about Dinosaurs. Don't these boys look dynamite with their matching outfits!<br />
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Thrilled by his friends at the party!</div>
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Oh yeah that is the face of an excited 5 year old boy!<br />
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Personalized water bottles & treat bags to keep everyone with their own germs:)<br />
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Hayden was thrilled with his old Rise School teacher, Mr. D visiting, his two physical therapists, shout out to Gil and Ruth, and his occupational therapist Emily, all there to help him celebrate his new fantastic turning five.<br />
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Hayden was very pleased with himself and his work on melting his dinosaur out of the ice cube with salt, water and food coloring. The museum is wonderfully accessible and wonderful for children of all abilities. Thank you Thinkery for being a heck of good time! <a href="http://thinkeryaustin.org/">link to the Thinkery</a><br />
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Lastly, this post is lengthy, and we will have to do another to document our journey to Mexico for Stem Cell treatment. Through many generous birthday donations, Hayden had enough funds to make a deposit and secure a date 6/26/14 for treatment. You can follow this journey at <a href="http://www.haydentrigg.blogspot.com/">http://www.haydentrigg.blogspot.com/</a> & <a href="http://www.gofundme.com/stem-cells-for-hayden">Donate to/stem-cells-for-hayden</a></div>
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We also are working out the details of hosting a hamburger & hot dog bbq in the park for anyone that would like to help support being a pioneer for stem cell treatment that is not offered for spina bifida pediatrics (yet). This information is soon to follow as we sort through red tape and wait for creative inspiration...</div>
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Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com0tag:blogger.com,1999:blog-5100589266453048503.post-42203448304730078022014-01-05T19:23:00.001-06:002014-01-05T20:06:32.946-06:002 weeks in Colorado<h2 style="text-align: center;">
<span class="Apple-style-span" style="background-color: white; color: red;"><b><u>On the way to Colorado:</u></b></span></h2>
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Over the many rivers, and through the woods, to Grandmother's house we go...<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjjdzLoVfZwbzJcg8gjjCSVta3W9ghu5jr1qyvaCUCYX3aFC8ypcOagBPaoaObbC6obmC9H5G_S06jzB7sUtATh0CgdHIGTyJHDMssWLaS-rdC0x1CbORDg7IbUUbUOFyQVtn17V3yl9JM/s1600/IMG_3092.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjjdzLoVfZwbzJcg8gjjCSVta3W9ghu5jr1qyvaCUCYX3aFC8ypcOagBPaoaObbC6obmC9H5G_S06jzB7sUtATh0CgdHIGTyJHDMssWLaS-rdC0x1CbORDg7IbUUbUOFyQVtn17V3yl9JM/s1600/IMG_3092.jpg" height="320" width="234" /></a></div>
Before we left the ladies couldn't get enough of Hayden. Why do you think he loves church so much!?<br />
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Garrett turned 11 months while we were there and cut two more teeth.</div>
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The kids were amazing to ride all the way on the 16 hour trip. We made it in one day by doing whatever they wanted with movies and lots of snacks. The wheelchair lift came in handy to haul all our luggage while we had the car packed with a stander, wheelchair, lots of medical supplies, diapers, diapers and did I say diapers and presents.<br />
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<b><u><span class="Apple-style-span" style="color: red;">4 Generations under one roof:</span></u></b></h2>
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<span class="Apple-style-span" style="font-size: small; font-weight: normal;">On Sunday we got to go to church with their Great Grandmother aka Gigi. </span><br />
<span class="Apple-style-span" style="font-size: small; font-weight: normal;">The kids got an early christmas of Colorado coats and pose with Gaga & Great Gigi.</span><br />
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While it was much colder than we are used to in Texas, the kids were very excited to see snow and visit the North Pole, Colorado where Santa lives. Norad tracks him every year as he travels through the sky to deliver presents.<br />
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Gaga got the boys polar bear hats and gloves. They were cute little monsters who weren't sure if they liked the hats until they felt how cold it was without them.<br />
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Hayden was so cold and discouraged for the train but once we got on it and then rode the gondola, he changed his mind. He was even thankful for it in his nightly prayers.<br />
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The North Pole village is adorable. Be sure to dress warm if you ever make it there.<br />
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Garrett and Gaga photobomb on the train.<br />
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The wait outside Santa's house was long and cold. Everyone seemed to think it was very worth it and wonderful except for Garrett. Hayden couldn't take his eyes off of Santa.<br />
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<span class="Apple-style-span" style="color: red; font-size: 24px; font-weight: bold;"><b><u>Christmas:</u></b></span></div>
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Garrett & Hanna loved Aunt Sue Su and Uncle Alan!<br />
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Hanna couldn't believe that she got a letter from Santa. She knew this year she couldn't sneak and open up all the presents like she did last year. She exercised real patience until 6 am.<br />
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I love how easy the kids are to please at this age. They really don't have any expectations and find joy in the littlest things.<br />
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This was my baby Garrett's 1st Christmas. He is so big now. I couldn't stop kissing him all day....that is when I could catch him.<br />
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Mom's pretty mantle & picture of her old home in London.<br />
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These two ladies sure could cook up a storm. Even if were snowed in for weeks we wouldn't have run out of food.<br />
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It was such a relief to have so many family members like Aunt Janie to be an extra helping hand. That must have been why I gained 5 lbs from all the free time to eat.<br />
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We had lots of mobility devices to make Hayden independent and one to keep Garrett contained.<br />
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Hanna and Scott loved the chance to have a snow ball fight....<br />
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Scott a little too much...<br />
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Hanna got him a few times pretty good though...<br />
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<h4 style="text-align: center;">
<u><b><span class="Apple-style-span" style="color: red;"> Sledding in Guffey:</span></b></u></h4>
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Possibly one of the best times ever. Aunt Ginger and Cousin Emy & Maggie drove 4 wheelers up the mountain so we could sled and roast marshmallows.<br />
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Once upon a time, I used to live in that barn there when I was little.<br />
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Garrett was still a little unsure of just how much fun this really was.<br />
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My famous Hanna Ranch cousins, Maggie & Emy. I loved that we got so see each other after too many years. Aren't they so pretty & smart too!<br />
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Aunt Ginger is much like my grandma that passed away many years ago. She is tough and so much fun!<br />
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Hayden loved the snow this time. I got us some momentum on the sled. He had been wanting for so long to make a snow angel.<br />
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Who doesn't love roasting marshmallows?<br />
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Ol' friends and a happy day.<br />
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Hanna thought she was going to hunt this dear. Only problem, she needs to learn how to be a little less obvious. Pink is the new camo.<br />
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Don't worry, I didn't drop my drink or the camera.<br />
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Hayden driving with no hands! Thanks Emy!<br />
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Maggie taking it easy on her freeloading cousin.<br />
<h2 style="text-align: center;">
<span class="Apple-style-span" style="color: red;"><b><u>Skiing Beaver Creek:</u></b></span></h2>
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Easy come & hard to go. Beaver Creek spoils you. And we were spoiled with discount tickets from our friends Josh and Stacey who have the best job working for Vail resorts. I would like to ski and get paid too:).<br />
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We had been planning on taking our kids but decided at the last minute to leave them with our family before we try and teach them how to ski when they are older and will appreciate it.<br />
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At the bottom of this run we ran into a differently abled ski/sled instructor/nurse. She gave me her personal business card and told us to come back with Hayden next year. I think we will!<br />
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Selfie as we were the last ones down the Grouse Mountain followed by ski patrol for 2013.<br />
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A happy start to 2014!<br />
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The second day it snowed all day and the skiing in the trees was amazing! Unfortunately the drive back was awful taking 8 hrs to go 150 miles. It was the worst I have ever seen in all my years living in Colorado. So glad the kids weren't with us that time.<br />
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<span class="Apple-style-span" style="color: red;"><b><u> Saying Good Bye:</u></b></span></h2>
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We had to take our annual pilgrimage to the Broadmoor. We used to go every year as a child to see the spectacular lights and Christmas decorations. It was all we could do to say a little thank you to Momma for taking such good care of us and letting us invade her home for such a long time. We can not begin to repay for the easy healthy vacation we had. <br />
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<h2 style="text-align: center;">
<span class="Apple-style-span" style="color: red;"><u>Happy New Year!</u></span></h2>
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2014 has so far been such a welcome relief from the tough year that 2013 was on all of us. While no doubt trials will be upon us this year, having heathy children is such a precious blessing. </div>
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When we arrived home we were greeted by many wonderful cards. We love looking at each and every one of your good looking faces! It was especially wonderful to get cards from kids that look like my Hayden, with walkers, wheels & crutches. We will leave these up until our next holiday, Garrett's 1st birthday!</div>
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<span id="goog_267625127"></span><span id="goog_267625128"></span><br />Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com0tag:blogger.com,1999:blog-5100589266453048503.post-62639707237932897202014-01-05T15:19:00.000-06:002014-01-05T17:10:40.886-06:001st Family of 5 photo session<div class="separator" style="clear: both; text-align: center;">
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Thanks to the magic, creativity and patience of Wendy Bushman Photography, we got our first family photos (and Christmas cards). It couldn't have been a better day at Emma Long city park. Everything went perfectly.<br />
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There was just too much love. Everyone wanted to hug Hayden & sit on Daddy's lap.<br />
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Oh my what big blue eyes you have Hayden.<br />
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Hanna was hard to keep away from the water and the nature around her.<br />
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Garrett is still not quite ready to do it alone. He pushes this all over the apartment, which doesn't get him very far.<br />
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We call him Garrett on the go.<br />
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Wendy's lovely assistant kept the kids while we got our brief shot alone.<br />
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Garrett doesn't just give away smiles, he has to really like you.<br />
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Scott trying to inspire some karate moves.<br />
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Hayden loves his Daddy.<br />
<br />Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com0tag:blogger.com,1999:blog-5100589266453048503.post-44308905885272308952013-12-07T20:17:00.001-06:002013-12-07T21:17:08.660-06:00My baby girl turns 7!<div class="separator" style="clear: both; text-align: center;">
We have hit a happiness streak! My baby girl turned 7 years old and had the best Princess & Pop Stars dance (Call Me Maybe) birthday ever.</div>
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Thanks to a silent auction raising funds for special needs kids horse riding aka hippotherapy (at <a href="http://www.redarena.org/" target="_blank">Red Arena</a>) we were the lucky high bidders on the birthday party at <a href="http://paiyhdancestudios.com/" target="_blank">PAIYH</a>!<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhU0x5EiL2pDLGaeH5OZVyBkBIX0I_2kz0GexF9xhT59q1wKAIk98qtfkLv58BiiTrV_L4Idznro8wcCWZP0s-8aBX9kSuUPfLAOEHmEcaxM7xFZEbjO1XqAKGQ5ElTzb4cvZLRl4AvNkg/s1600/IMG_1073.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhU0x5EiL2pDLGaeH5OZVyBkBIX0I_2kz0GexF9xhT59q1wKAIk98qtfkLv58BiiTrV_L4Idznro8wcCWZP0s-8aBX9kSuUPfLAOEHmEcaxM7xFZEbjO1XqAKGQ5ElTzb4cvZLRl4AvNkg/s320/IMG_1073.jpg" width="213" /></a></div>
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Do you notice her tooth is just hanging on? Pure joy today!</div>
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Hanna invited her girl friends from class, cheer and a few other long-time special friends.</div>
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I love how the kids were dancing and having fun and didn't have a care about who was watching. Hayden was rocking out as the only boy at his sister's all girl party.</div>
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Scott was working on teaching Garrett the robot dance moves.</div>
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The boys dancing together.</div>
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Feeling blessed that Hanna has so many kind friends to grow up with. The kids ate pizza, chips & ice cream under the disco ball. No cake for this girl? It was what she wanted and you can tell she has her own ideas about a few things. </div>
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It was a low stress joyful moment to remember!</div>
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This was her outfit on her actual birthday at school.</div>
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Fancy Nancy hair.</div>
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Face painting with a friend. Definitely hire Michelle. She is awesome! <a href="http://www.onthespotbodyart.com/" target="_blank">http://www.onthespotbodyart.com/</a></div>
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Hanna all bundled up for her party in cold Austin with her present "Fur Real" kitty that she wanted terribly. She got so many wonderful presents and is the most happy 7 year old for sure.</div>
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Getting to meet Santa and play in the truck of snow that they dumped off for Texas kids to feel what it is like.</div>
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Practicing writing thank you list to all her friends.</div>
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Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com0tag:blogger.com,1999:blog-5100589266453048503.post-81143896863695523632013-11-25T10:12:00.000-06:002013-11-25T17:27:38.661-06:00Kicked out of Camp<div style="text-align: center;">
Skipping over the past 6 months for this post. More to come...</div>
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Yes we did get kicked out of camp, but it was for a good reason. We had the best short lived time at camp John Marc (aka 170 acres of Heaven on Earth). Due to unusually cold weather, they shut the camp down for safe travels on slick Texas roads. </div>
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<span class="Apple-style-span" style="font-family: georgia, 'times new roman', times, serif; font-size: 14px; line-height: 21px;">About: Special Camps for Special Kids serves children with chronic illnesses and major physical disabilities, and the families of those children, by making possible high-quality, year-round camping experiences at Camp John Marc. </span></div>
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<span class="Apple-style-span" style="font-family: georgia, 'times new roman', times, serif; font-size: 14px; line-height: 21px;">The history is quite touching. The family donated the land as a living legacy and tribute to their son, John Marc, that lost his battle with cancer when he was just 9. His memory lives on and continues to bless lives of thousands of children. It is an inspiring place where we get to be a happy normal family at an extraordinary camp!</span></div>
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<span class="Apple-style-span" style="font-family: georgia, 'times new roman', times, serif; font-size: 14px; line-height: 21px;">Click here for the link: <a href="http://www.campjohnmarc.org/history.html" target="_blank">History</a></span></div>
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We were invited for a weekend family getaway to Meridian, TX. Only 4 families were chosen for the weekend. They were mostly from the Dallas, Ft. Worth area. I don't know any others who had been there from Austin. As it turned out, it was only us 2 other families that got the entire ranch to ourselves.</div>
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This was truly my kind of camping. Two bedrooms, a handicapped accessible bathroom, washer & dryer and full kitchen and living space & even a nurse on staff.</div>
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Our first stop was the arts and crafts station. We didn't want to leave. An entire building stocked with every craft you could ever imagine. It was overwhelming. Like we had been dropped off at a Michael's and said have anything you like.</div>
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Garrett looking for anything on the floor that he might be able to put into his mouth.</div>
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Hayden and Hanna made keychains and bracelets with their name for their backpacks. Hanna also made a jewelry box with feathers and lots of modge podge.</div>
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Hayden loved air hockey! Looks like this is something we may need in our future.</div>
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Panoramic of the long accessible trails they have all around camp. No cars allowed.</div>
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The gates to the camp are beautiful!</div>
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Some of the covered walk way. We were so happy even though it was cold and rainy. I think the only thing that would have possibly made it better was if we had good weather too.</div>
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Here is the story.</div>
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Beautiful details were all around us.</div>
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The wonderful donations that made much of it possible.</div>
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Can you get over how awesome and huge this place is? This was just one of the many buildings.</div>
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We got it nearly all to ourselves. </div>
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The amazing kitchen were they have cooking school for the summer campers.</div>
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Play Room for Dress UP</div>
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Hanna met another 6 year old friend.</div>
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A fishing pond. Good when the fishes aren't at the bottom hiding in the warmer water.</div>
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Just happy.</div>
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Even though we were sad to leave. It was a huge success for our 1st family trip that Hayden wasn't vomiting in the car or needing to stop and vent the air out of his stomach every 30 minutes. It was relaxed and wonderful even though it was just 24 hours.</div>
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We can't wait to go back!</div>
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Adrienne, Hanna, Hayden & Garretthttp://www.blogger.com/profile/14221381922416430783noreply@blogger.com0