Monday, October 20, 2008

Spina Bifida




Click on pictures to see larger detail.

Today we had a long ultrasound. It was shocking and sorrowful to find out that our baby boy has the birth defect spina bifida. We learned this because the left ventricle of the brain was slightly large at our last ultrasound so we had a follow up. The specialist confirmed ventricle growth.


We have an appointment with a pediatric neurosurgeon and a neurologist in a week. The simple diagnosis is fluid and swelling of the brain with a hole in the spine. We were recommended to look into a study of surgery on the baby before birth (usually the 25th week and I am 21 weeks) or the immediate surgery on the brain and spine after birth.

The doctor recommended best websites are:
http://www.spinabifidamoms.com/
http://www.marchofdimes.com/pnhec/4439_1224.asp

We did get some beautiful pictures.  Right now the baby is the perfect size for gestation and the legs, feet, hands, arms and cute face all look good.

Thank you again for your silent prayers. We will be asking for God's mercy and a miracle to guide us to heal and help our baby.

1 comment:

Ang said...

You guys are all on our minds and in our prayers. Lots of love and good wishes your way. . .