Another amazing Spina Bifida family. I am trying to plan a get together for all of spina bifida blogging buddies. It is my dream to meet all of you. It is also so great because many of us have boys so close in age. Although I want the girls to come too. Would you be interested???? I am hoping for next summer or fall 2011. Whatever works best and possibly disneyland area or another location if it works better. I hope to get a conference room so we could chat for hours. I have met so many amazing families and through blogging feeling connected. A goal of mine is meet because we all share that special bond. Let me know if you are in??? Right now I am just trying to get the word out and see who is interested. I am not sure if we will do families or just mom and child. We will have to see what works best for all. P.S. What an awesomw vacation..... jessicamadsen@hotmail.com
I started this blog for updates for our out of town family and friends who want to follow our daughter, Hanna (12/06), and son, Hayden (2/09), who was diagnosed with Spina Bifida and Arnold Chiari II brain malformation and our newest son, Garrett (1/13).
We started this blog to let friends and family know of our medical news from IVF and now our family history.
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Another amazing Spina Bifida family. I am trying to plan a get together for all of spina bifida blogging buddies. It is my dream to meet all of you. It is also so great because many of us have boys so close in age. Although I want the girls to come too. Would you be interested???? I am hoping for next summer or fall 2011. Whatever works best and possibly disneyland area or another location if it works better. I hope to get a conference room so we could chat for hours. I have met so many amazing families and through blogging feeling connected. A goal of mine is meet because we all share that special bond. Let me know if you are in??? Right now I am just trying to get the word out and see who is interested. I am not sure if we will do families or just mom and child. We will have to see what works best for all. P.S. What an awesomw vacation..... jessicamadsen@hotmail.com
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